Bicuspid aortic valve disease
Im a young mom and I just found out last week my 5 year old son has Bicuspid aortic valve disease. We found out due to a heart murmur that have never been caught before last month. The doctor said his aortic was enlarged and that they would just keep an eye on it and then after leaving the doctors office they called me again saying they had another docotr look at it and only one of his valves is working properly so they want us to come back in 3 months instead of 6. We've noticed recently when hes running and playing with his siblings it feels like his heart is going to pound out of his chest. We were also told that me and his siblings will also need to get echos due to the disease being hereditary, and im almost certain my dad had the same issue so it makes sense. But honestly im just terrified I have no idea what this means for his future or how I can help him understand. I myself am still trying to wrap my brain around it. Any more information you could give me would be fantastic or anything I need to change in his daily routine.