u/princessa-xoxo

Hey all. I’ve been ill since 2023 after EBV and multiple Covid infections. I was wondering how many others suffer with severe MCAS and how they’re coping? I think it drives most of my symptoms and it has got progressively worse for me the last year. I’m on antihistamines and started a mast cell stabiliser, which slightly helps, but not massively. Whenever I eat something slightly high in histamine, I still have awful reactions. Apart from that, I don’t really know what I’m supposed to do. I just wish there was more research into it as I feel like the mast cells might be playing a key role.

Hey. I’ve got my telephone assessment soon for PIP and I’m absolutely terrified tbh. I have multiple chronic conditions which are extremely difficult to remember and explain, especially with my brain fog. I’m mostly bedbound and I just don’t want to mess this up and have to go through the process again, I’m extremely anxious and it’s making me feel even more sick. Also knowing that I’ve waited this long and I need the financial help to afford private meds. Any advice?