Feeling really lost
Hi there. I started developing hand pain about two years ago, which spread to other joints as time passed. For the past year, I’ve been in pain nearly every single day. The fatigue is so bad some days I can’t sit up. I took time out of university, with just one semester left, because I couldn’t find the energy to work, and my brain fog was too bad to write my essays and do work. I was sure that by the time next January rolls around, doctors would’ve found out what’s wrong with me and I’d be getting treatment that improved my symptoms.
Doctors thought it was RA for a long time, but after multiple ultrasounds and X-rays, no inflammation could be found. I don’t have swelling either. I did have an effusion on my knee, but I’m overweight so the rheumatologist just put it down to that. She just sent a letter saying she thinks it’s fibro. Correct me if I’m wrong, but my understanding of fibro has always been that it’s a diagnosis you get when they can’t really put another chronic pain label on it. On top of this, fibro doesn’t have any real treatments from my understanding.
I’m meant to start university again in January. Since I took time out I’ve just been getting worse and worse. There’s been nights I’ve been crying to my husband to cut my hands off, I’m just in so much pain I just want them off. I feel like my rheumatologist never took my pain seriously and didn’t understand how badly this is effecting me. I just don’t know what’s wrong. I didn’t want this to be the answer, just SOMETHING with a treatment that treats the root cause, rather than just painkillers. The painkillers obviously don’t help the fatigue or brain fog. I’m feeling so very lost and I’m scared now I won’t be able to finish university. I feel like a failure. I’ve been a house wife for these past months. I can barely clean most days. I feel like such a failure. My husband had to help me eat the other day, and he has to do housetasks after a long day at work whilst I’ve been home all day. He says it’s fine, does it with a smile, but I feel like such a burden. I just don’t know what to do anymore.