u/r4d1229

Thanks for running this group that I just discovered. I'm adding the "Figure 4" stretch tomorrow.

Main question if TLTR, is whether there's a known pudendal nerve expert near home in Cleveland. I haven't found one, not even at the Cleveland Clinic.

Story:

61M a year into my 4th flare-up of perineal, groin, and scrotal pain spanning 20+ years. Been able to recover each time. Last three flare-ups lasted 6-30 months.

Diagnoses have been GF and pudendal neuralgia, chronic pelvic pain, and post-vasectomy pain. Three of four bouts, including this one, followed recreational bicycling. Had vasectomy 21 years ago, urology initially pinned pain on that, and had it reversed. Pain free 5-6 months later. Also lowered my PSA from 4.2 back to 1.0 and restored my T from 300 to 750, even now 20 years later.

Next, shortest bout resolved with gaba and NSAIDs. Third bout, longest, finally resolved with cord blocks, GF blocks, and pudendal blocks.

This bout, I had targeted micro surgical spermatic cord denervation instead of block(s) which resolved stinging in the cord but left the other, worse perineal symptoms. Urologist referred me to a pudendal specialist urologist about 3 hours away. Can't see him 'til September.

Classic symptoms. Pain free in the morning, worse as the day progresses. Too much sitting with job and winter in Ohio. Stretching, Pelvic PT, TENS, massage, ice, hot baths, walking all help, but just can't get over the hump. Hoping the new stretch directed here helps.

Pain mgt. block of pudendal in March worked but wore off quickly. Steroid was not durable. Pain mgt. recommended a second block, this time a caudal block, to address peripheral nerves. That's next week.

Doing Pregabalin, and Meloxicam. Just added Nortriptyline. Supplements are Nerve Shield, COQ10, and Zyflamend..

Lastly, had L5/S1 fusion in the midst of this in 2012. Pain mgt. also referred me to neurosurgeon to look at the sacral and lumbar.

VERY open to hints, suggestions, or recommendations on what to continue, discontinue, or add. Also interested in learning of resources near Cleveland OH.

Thanks!

Since late 2009, we've owned a popup that we could tow with one of our daily driver vehicles, at first my wife's minivan, later a family-shared TrailBlazer, and now my compact truck Colorado which enabled us to "upgrade" from a standard popup to a highwall popup. They all have fit in our garage and have avoided being parked outdoors where our Ohio winters can be rough.

We've also be able to store our popups on a 20' pad in the backyard of our typical, northern suburban development. Our highwall is 18'-19' rear to hitch so it fits.

We're looking at TTs that would likely require a 3/4T truck, perhaps a max-tow equipped 1/2T and would be too long to fit our our pad. Sure, we could expand our pad but a 6,000-7,000 lb., 27'-30' TT won't be as easy to spot back there even if we expand the pad. Plus, we don't see a 3/4T or 1/2T full-size truck fitting in our garage, and we're nervous about the cost for something that'll sit outdoors.

What do you all do?