Bfs diagnosed but could it be fnd?
Hi everyone I have a new neurology appointment with a new doctor on the 27 of this month. 3 months ago I had a twitch that started in my thumb that lasted 4 hours and left, few days later it happened again, a few days after that I had a full body twitching at night that lasted 8 hours. This caused me to see a neurologist since my only symptom was twitching which went back to only my thumb they thought bfs. I had a clean emg, eeg, and brain mri so the doctor again and explained I had what I felt was muscle weakness in my arms and very quick muscle fatigue. They tested some strength and reflex stuff but ultimately said its bfs but they did more blood work to test MG, which came back fine. My arms issue lasted weeks and I finally went to a pcp who said try pt for a stiff neck/shoulders.
Today I had the pt appointment mentioned the weakness issues and he had my hold a 8 pound weight straight out and my arm was shaking not necessarily a fnd issue but I then did a grip strength test 3 times in a row and he didn't tell me the results. This got me thinking the muscle weakness was real despite a clean emg which led me to FND. So im wondering has anyone thought they had bfs only to figure out it was fnd? My hands and feet are always cold but there is no change in color my sleeping has been worse can't fall asleep and even if I do I wake up 6-8 times. Even with trazodone I had bad sleep. Everything im seeing leads me here. I know FND has a very wide net of issues but I was hoping to get some input before this new neurology appointment with a new doctor. I will not be telling him I think it is fnd but instead telling everything from the start and seeing if he also believes its bfs. I just can't figure out a reason for this tension and fatigue in my neck shoulders and arms that lasted for almost 2 months. Thank you.