basically its required to have a parent/ someone who knows you personally to be your personal mentor for my bachelor degree (insane i know) and i dont have anyone. its rly short notice, so if anyone wants to be my parent and genuinely get to know me Nd i guess be my friend hmu haha. i’m also way too old for this cos i changed degrees so now i’m starting a new program at 22 lol.
trigger warning: small mention of medical trauma, and venting,
hi, i’m from a rural village in the east of the netherlands and accessing care has been incredibly hard for me. i was diagnosed with pots and hEds informally by a neurologist who has been trying to refer me to a rheumatologist since february. i’ve had symptoms my whole life, i show all signs of cEds including the bad scarring on my knees etc. my mother has had to have her hips replaced and other surgeries. i have extreme hypermobility and dislocate my joints all the time causing me a lot of pain. i have been dismissed and made fun of by doctors, i have experienced severe bullying by medical professionals. i’m seriously struggling, and i want answers. i just want to get genetic testing done, does anyone know how to access this in the netherlands. i don’t mind paying out of pocket at this point. any advice is welcome, i just want medical care. my main goal is to make my life easier. i cannot carry backpacks to college without severe pain in my shoulders. does anyone know what i can do?
i have this weird issue that wearing hats and headphones make the top of my head really sore from the pressure. even just beanies and stuff. i cant figure out why, can it be due to my hEDS or does anyone else experience this