u/rsmg5

Does anyone know if there’s anything that can temporarily stop or reduce coughing I struggle so much mentally every time I go out in public because as soon as I start coughing people stare at me or move away like they’re disgusted or afraid of me and honestly that’s one of the hardest parts of living with cystic fibrosis I’ve started avoiding public places and spend most of my time alone at home because it’s affected my mental health so much Is anyone else dealing with this and if so how do you cope with it

Has anyone with a Class V CFTR mutation (splicing mutation) used Trikafta? I’d love to hear your experience, did it help with lung function, mucus, infections, or overall health?

What’s the best nebulizer for daily use that’s easy to clean and has good build quality? Also is it better to go for a rechargeable portable one or a plug in electric model? I’d really appreciate hearing your experiences and recommendations

My pancreas works normally and I dont have digestion issues and I already did reflux tests and they said I dont have reflux and I dont even have reflux symptoms the only problem is extreme nonstop burping all day for almost a year now I cant leave the house or even meet people anymore and its starting to make me severely depressed because of how bad it is and until now nobody figured out the reason every time I go to the hospital they just give me antacids and gas medicine and literally nothing changes not even 1 percent and nobody understands that the burping I have is not normal has anyone gone through something similar and actually fixed it

Hi everyone,
I have a relatively mild CF mutation but during the last 5 years I started developing more classic CF symptoms like chronic cough and chronic Pseudomonas infection My condition has been stable overall, and I use inhaled Colistin every other month
Today, for the first time in my life I coughed up blood.. It wasn’t a huge amount, but it looked like dark red blood with a little mucus. In the past, I only had tiny streaks of blood mixed with sputum maybe twice but this time it was more noticeable and it really affected me psychologically I’ve been crying for hours and I can’t stop thinking about it..
Right now I don’t have fever worsening cough chest pain or shortness of breath Actually my cough is currently very mild.
Is this something that can sometimes happen with CF,bronchiectasis and not necessarily mean an emergency? Or should I go to the ER even if it was a small amount and only happened once?
I’d really appreciate hearing from anyone who experienced something similar because I’m extremely anxious right now.