u/sandwichmagnet

I have had several endoscopies before and i assumed this one was going to be basically the same, I've always been fine the day after. But for the past 4 days I've had pretty persistent abdominal pain and trouble eating enough because of that and on/off nausea.

I'm assuming this is due to the biopsies. The other weird thing is since the procedure I've had a huge increase in daily fatigue, plus dizzy spells every time i eat. Also I'm more prone to car sickness for the past few days for some reason.

This strikes me as really strange, has anyone else had something like this happen to them?

Sorry for long post, I've not posted to reddit in many years.

I was in the hospital for like half of December and even then my CRP was pretty low. Once I got out I started Skyrizi and I've been so excited to feel better. My energy level generally went up but I still couldn't expand my diet at all. I figured it just will take time.

Then this past week happened and I've been in large amounts of pain with diarrhea etc. Blood test came back to show CRP at ~25. My GI told me to take Budesonide through the weekend and see what happens.

I went to the ED that night due to chest pains and after some blood tests they sent me home.

Stool test came back after ED visit, to show that C Diff GHD test was positive, but the C Diff Toxin test was negative. Apparently that means I don't need to be treated for C Diff, which was confusing to me at the time. The on-call doctor told me to continue with the Budesonide plan, and that we are not treating C Diff (this was after 3 different phone calls with him, the first 2 he basically told me nobody can do anything until Monday unless I go to the ED again)

Just got my blood tests back from MyChart and apparently while in the ED my CRP shot up to 62 mg/L and this wasn't concerning to them at all.

At this point I'm just gonna see if I can get in contact with my GI office Monday morning, but this whole process is just excruciating. I was diagnosed in 2024 and I feel like I haven't seen any consistent improvement and my life has stopped dead in its tracks. Definitely struggling to see the light at the end of the tunnel here.

TLDR: Doctors are annoying and vague, nobody seems concerned that my CRP is the highest it's ever been and I'm still confused why a positive C. Diff GHD test doesn't mean anything. Nothing is getting better and life seems to only be getting more difficult.