u/scaneb

I've been going with this for months and it's worse now than ever.

Even while lying flat on my back, I feel a discomfort in my neck which gaves me a general feel of discomfort in my whole living experience.

I can't forget I have a neck bothering me. It makes me feel irritable, not grounded, distracted, not in the present, not comfortable on my own skin.

Do any of you relate with this? And is there any way to stop this feeling if I can't access to treatment yet? (surgery / prolotherapy)

Maybe some kind of pill, I don't know

Thanks

I already bought an adult Aspen Vista (adjustable) and I get pain as soon as I put it. I feel it pushes me forward in a weird position.

Have you been lucky with any one else?

And have any of you gotten a professional fit collar?

I'm thinking on trying a classic Philadelphia (easily accesible), a Miami J (I often see it mentioned in cci communities), and a proffesional fit one.

I just meassured my neck and it's 10 cm tall, 39 cm circunference.

Thanks!

This question just got into my mine.

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A fusion surgery is something a lot of neurosurgeons are familiar with.

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Why we need to get the surgery from a CCI specialist? Wouldn't it be the same as long as the doctor knows how to do it correctly?

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Thanks

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I live in Venezuela and getting a diagnosis is really difficult. Of course I'm trying my best not to get to such situation, and getting a diagnosis before something like that.

But I was wondering this, if one goes undiagnosed and untreated, and deteriorate, doctors find out sooner or later?

Because I had a friend who died with this and other conditions and I remember she was using an oxygen machine to breath in her last days.

So basically her oxygen saturation was very low and I think that could have something to do with CCI damaging the spinal cord and she could not walk.

How would doctors explain a situation like this?

I know some doctors can go to extremes to blame patients and avoid being humble about not having an answer. And I don't discard they assuming some people can't use their legs because of depression and deconditioning. But how would explain extremely low oxygen saturation? Anxiety? I would not be surprised either but this would be way harder to sustain I guess?

Also, would signs of CCI or the damages caused by it show finally on common exams like flexion and extension x rays, or supine straight mris? Or you can go to very severe with conventional images not showing anything still?

She got a diagnosis with a special flexion and extension supine mri. But when she had that it was too late to do anything based on the doctor who finally listened to her and he told her she was not a candidate for surgery. I don't know if this was also correct, or if such thing can happen when even it's too late for surgery?

Thanks and sorry for the doomer post. Sadly it's a harsh reality some of us go through.

(Amyotrophic lateral sclerosis)

Should we get tested for it? I see a lot of overlapping symptoms