




Curly hair gaslighting
I try not to get upset by this, but often when talking about my battle with chronic TE to folks who haven't experienced hair loss, I am met with sometimes LITERAL laughter, and "but your hair is so pretty!" Ok... thanks I didn't say I had ugly hair 😭 I know it looks fuller than it is because I have curly hair privilege. I don't have AGA. I know it looks "good" because I spend $$$ money on products and supplements and prescriptions and hours making it look its best, don't bleach, no heat. All the short hairs all over my scalp help give the illusion of volume, but I cannot keep length. I cannot grow past my shoulders or it starts to look like a mullet. It HURTS to put in a pony tail (and tbh looks terrible) because it's pulling and tugging on all those short hairs. Even my dermatologist was hesitant to prescribe Spiro until I said "ok, observe" and took my hair out of a clip and ran my fingers through my hair so he could watch strands start flying all over the place 😭 I have developed an obsessive need to get all of the loose hairs off of my head. I don't "pull" on them but a 5 minute session of running my fingers through my hair while sitting in the couch gives me a lovely thick hair ball... no one believes me until I show them my scalp. I know it looks better than so many people that are dealing with much more severe loss. That doesn't mean I'm not experiencing it though.