u/skeletonloves

I'm a 20 y/o female, recently dx'd with uctd but sx leaning towards lupus.

I've been an LPN for two years - hospice & long term care. I'm struggling to even work part time now - I do 8 hour shifts two/three days a week. My current job does NOT have self scheduling so I work the same days biweekly in rotation. I just took my RN NCLEX after graduating college. I was diagnosed the last month of school. I need advice/help. I love nursing, it's literally the only job I've ever had. I got my LPN at 18 right along with graduating high school.

My dream was to do ED/ICU. I need a job soon because I live alone and need to pay my rent. Part time isn't quite cutting it. Any help is appreciated 🩷

Hi! I have really been struggling lately with fatigue, joint pain, mouth & nose ulcers, chest pain, etc. I'm sleeping 11+ hours a night unintentionally and am only able to work part time.

I'm currently on these meds:

Robaxin prn

Low Dose naltrexone 1.5 mg at bedtime

Celebrex 200 mg twice daily

Plaquenil at bedtime

Arthritis strength Tylenol 2-3 times daily

I am really struggling and I need to get back to working full time - I cannot pay my bills consistently and I'm constantly pulling out of my savings. I'm only 20 years old. I recently got dx'd with UCTD but I am very concerned about lupus because of some new symptoms I've developed. I work as a nurse so it's a strenuous job. I've genuinely felt suicidal at times - I get so depressed not being able to work much or leave my house as much as I'd like. I've spent entire days in bed from the fatigue.

I messaged my rheumatologist asking about a shorter acting medication to bridge me until the plaquenil starts working (I've been on it for 1 1/2 months) Maybe low dose Prednisone or something. They don't want to try anything different and want me to wait until for follow up in August. I feel like I can't live like this. Please help!

20F

Just prescribed LDN by pain management for chronic fatigue and joint pain - I have uctd with lupus-like symptoms. Any success stories or anything I should know? I mostly say info on fibromyalgia usage but I do not have that so I'm looking for people's experiences with autoimmune conditions. Thanks!!!