my migraine story
i am a 22 y/o woman who has had migraines for 6 years. they became extremely frequent and prolonged when i was a freshman in college (18), to the point of having to go to urgent care several times, not being able to walk/speak/eat, or even open my eyes because it was so painful. the pain was traumatizing, and caused me to feel extremely depressed and anxious. school and work became very hard to keep up with so after months of waiting i got an appointment with a neurologist.
she diagnosed me with occipital neuralgia, and we started a treatment plan, trying preventative and emergency medications. i saw the tiniest bit of relief, so we tried botox which completely changed my life. the botox brought me so much relief over time, and i hadn't had an ER visit since.
over time, the botox started to be less effective, typically wearing off after 2 weeks and leaving me in pain until the next round 3 months later. i did my best to push through and try to ignore it, but the pain kept worsening again. i pushed through my final semester by constantly using delta 9, which sucked because i was constantly in a daze. i became emotionless, falling asleep all the time, forgetting everything, missing out on seeing friends because i felt so numb. the illusion that everything was okay shattered when i had a job offer retracted due to my THC usage (even though i explained it was for chronic migraines and provided a letter form my neurologist).
i surrendered to the pain and slept all day, just to be high at night, isolating myself and feeling like i wasn't real. the pain was terrible and i was too tired to fight it. i finally opened up to my parents about how bad it was, and we decided to ask my doctor about the surgery. after a month of preparation, i got the surgery.
it's been two weeks and i've already seen improvement, aside from the incision pain. it's weirdly good to have a different kind of pain. i'm hopeful it will relieve pain, but it's too early to tell how effective it will be, because i'm still healing. i'm optimistic this could be really good. i will be updating over the next months :)
i'm making this post to bring awareness and also to find other people who understand this kind of suffering. it has taken me to very dark places, and i want to lend a hand for people struggling with this nightmare. i hope this may bring u comfort, and feel free to reach out to me xx