Evolution of my "untreated" DLBCL stage 2
Hi, I tried to post my story on the groups Cancer and Lymphoma but unfortunately the mod bots auto deleted it... seems they really don't want people to know about non conventional treatments. Anyway, I just want to share my journey so far after refusing conventional treatments. My goal is not to convince anyone to refuse chemo/radio but rather share some hope, as well as my routine that may be helpful even for those doing conventional treatment.
40M living in Asia, so for Western folks, please understand that in this part of the world there are 2 schools when it comes to dealing with cancer and health in general: western medicine (including chemo, radio, immunotherapy etc for cancer) vs oriental/chinese medicine (mostly based on bacterial, plants, herbs to reinstate balance in the body, clean the blood etc). Many people here chose the latter to treat cancer, and not just as adjunct, but as core treatment.
So back in May I noticed an enlarged tonsil which I first thought to be a simple infection, but after ENT consultation the doc said it may be cancer... after biopsy and waiting for results for 10 days, it was confirmed to be DLBCL post GCB, and PET CT confirmed 2E as the stage.
While the oncologist wanted me to start 6 rounds of R-CHOP chemo within days after confirmation of the diagnosis and said that I had 70-80% chance of cure, I have made the difficult decision to refuse this treatment because I know a traditional medicine master who cured people with cancer (I have talked diligently to one of them who was in Stage 4 Lymphoma) and I had the personal conviction that the best route for me was natural healing.
The overall timeline and evolution of the cancer is like this:
May/June (diagnosis):
- tonsil: slightly enlarged, can talk and eat normally
- neck: no visible mass
- LDH (indicator of tumor metabolic activity): normal
- CRP (indicator of inflammation): not measured
- weight: normal
July:
- tonsil: very enlarged, can no longer talk and eat normally
- neck: visible mass, looks deformed
- LDH: elevated x2 healthy threshold
- CRP: elevated x7 healthy threshold
- weight: a bit slimmer but still normal
August:
- tonsil: still very enlarged, but getting better for talking and eating
- neck: even larger mass
- LDH: still elevated x2 healthy threshold
- CRP: back to normal, in upper range
- weight: underweight after a 7 days water fasting
End September:
- tonsil: mass shrunk by ~60%, back to talking and eating as normal
- neck: mass shrunk by ~90%, barely noticeable now
- LDH: back to normal
- CRP: back to normal, in lower range
- weight: still underweight
Sharing some pictures of my neck taken early September vs now, the image will speak for itself.
Here is my daily routine where I tried the combine the best from traditional Oriental and Western functional medicine:
- Asian herbal medicine 3x / day
- 1 tsp of black cumin in morning (chose one independently tested for its % of TQ, an anti cancer molecule) - FYI I just started this recently
- 2x green juices / day, using anti angiogenesis and antioxydant aliments (ie: celeri, cucumber, lemon, kale, spinach, turmeric, ginger, matcha powder, black pepper)
- Diet is keto/low carb (cf Press/Pulse protocole from dr. Thomas Seyfried, the diet is the 'press' to put the cancer under metabolic stress), and also eliminated completely all processes foods, additives, preservatives
- HBOT at 2.0 ATA for 50mn 5x / week (the 'pulse' to hammer the cancer cells with oxydative stress)
- 15mn green light therapy at NIR wavelenght on my neck 5x / week to stimulate the mitochodria
- 2h of molecular hydrogen inhalation / day (studies showed H² slows cancer growth)
- sunbathing especially the back every morning
- walking barefoot every morning, going to nature/sea/mountains whenever possible
- 0 chemical not only in my food but also on the skin (no shower gel, no shampoo, toothpaste is replaced by activated charcoal)
- breathing technique, Qi Gong
- less TV, more books
- very light exercise: walking, swimming, resistance training
- a lot of prayers and meditation to put the mind at ease and free of thoughts.
I am meeting my oncologist every month for blood work and will post here if any significiant update. While everything indicates that I am healing, my short term goal is now to regain weight. To be officially declared in remission I am supposed to do a PET CT which I will not do again given the toxicity of the liquid they have to inject. I will just stick to my routine.
Hope my story and routine would give some hope and be useful for some of you. God bless you if you are going through this and keep a positive mindset at all time, you've got this!