My mum has stage 4 pancreatic cancer that’s spread to the liver, I’ve heard stories of it helping others with the same cancer and them coming out cured. However, I know it can be heavy on the liver so I’m wondering if anyone could just give me a number or recommendation and how often to take it.
Thank you.
How do you manage dexamethasone/cortisone while staying keto during chemotherapy?
My mother has stage IV cholangiocarcinoma and is currently receiving gemcitabine + cisplatin. She is following a ketogenic diet, mainly to keep carbohydrate intake and blood glucose low.
The problem is that she is given dexamethasone (cortisone) around chemotherapy—currently about 8 mg/day for a couple of days—and it seems to completely disrupt her ketosis and raise her blood glucose.
I understand that dexamethasone is commonly used with cisplatin to prevent nausea, so I don't want to stop or change it without her oncologist's approval.
For those following keto during chemotherapy:
How do you deal with the steroid-induced rise in blood glucose and drop in ketones?
Did your oncologist allow a different anti-nausea regimen with less/no dexamethasone?
Did you simply accept the temporary loss of ketosis around chemo and return to keto afterward?
Is there anything safe that helped you get back into ketosis after the steroid course?
I'm particularly interested in experiences from cholangiocarcinoma or other cancer patients receiving cisplatin-based chemotherapy.
Thanks.
Pancreatic cancer is the most deadly insidious cancer and we have actual survivors who have been kicked out of this sub for spreading what these moderators call "disinformation" and "miracle cures" only because it veers away from or adds onto standard of care protocols from oncology wards. Integrative oncologists who have had great success with pancan patients (some of whom I know personally) who incorporated adjuvant protocols that included keto diets, high does vit c, d, fasting, repurposed drugs, supplements are doing so well because of this. This is a personal choice that all patients have to make after doing their own detailed research and consulting with their medical team. Everyone is different. You can't call a protocol "disinformation" when there are hundreds of published peer reviewed scientific papers from the greatest research oncology institutions in the world including Johns Hopkins, MD Anderson, USC about the effectiveness of these repurposed drugs and therapies in their years long in vivo and in vitro experiments. Johns Hopkins has patented their own version of Mebendazole and are rolling it out in clinical trials with all their advanced cancers including pancan for crying out loud! Just because your oncologist doesn't prescribe it doesn't mean it doesn't work. A lack of large clinical trials doesn't mean it doesn't work. Again, it's a personal choice. Choose the protocol that makes sense for you and learn the science behind it. But no oncologist has ever claimed that this published research conducted by the leading cancer biologists in the world is false, so why are moderators on this thread acting like it is? Who is any moderator to decide an integrative medicine doctor is not worth listening to? Or the top cancer cell biologists, oncology researchers at Johns Hopkins, Boston College and University of Iowa are not worth listening to?
It's dangerous and wrong to be kicking out survivors whose protocols incorporated other things besides toxic chemo drugs. We should be hearing from ALL PAN CAN SURVIVORS who want to share their stories especially since there aren't that many of them, let's be real. And some of those survivors do include people who received only standard of care, absolutely. If one of the "rules" of being part of this subreddit is "NO DISCRIMINATION" then why are survivors and caregivers who incorporated these adjuvant protocols to much success being kicked out and banned? That sounds pretty discriminatory to me.
These moderators claim to only publish "evidence based" standard of care treatment plans, but there is no "evidence based" standard of care treatment plan from any oncology hospital in America that has effectively cured pancreatic cancer for all those dying from it! What clinical trial has cured a large demographic of pan can sufferers in the last 50 years? Maybe it's time to be open to new or differing scientifically backed information, isn't this what reddit is for? Especially with a cancer like this, the more information, the better.
This is life and death after all.
I’ve been reading about people using fenbendazole and ivermectin for cancer, and it seems like most of the stories I’ve found involve people taking them while also receiving chemo and/or radiation.
My mom went through traditional treatment, but her doctor recently decided to stop all treatment. I’m wondering if anyone has experience with fenbendazole and/or ivermectin after conventional treatment has stopped.
Does anyone know if these treatments are thought to have any effect on their own, without concurrent chemo or radiation? Has anyone been in a similar situation and tried them?
I’d really appreciate hearing about your experiences. Thank you.