My college friends got me a Reggie Miller jersey for my 22nd birthday (alongside childish gambino tix) and I barely got to wear it before it disappeared. And today, rummaging through a bunch of crap, I found it.
I couldn’t be happier! What an amazing jersey.
I am going to talk to my doctor about this tomorrow but just wanted to see if anyone else had the same experience.
I had my first transplant about 15 years ago (i'm 34 now) and never had any serious ED issues. But ever since I started dialysis about 3 months ago, or at least I think that's when it started, I cannot get an erection. Forget maintain one, I cannot get hard at all. And this goes for solo play or if I am with a girl (that was an embarrassing experience to say the least).
For what it is worth, my blood pressure does run high, although I am on meds for it. I've read that it could be related but I don't know why dialysis / kidney failure itself would cause ED. I'd say that my libido is significantly lower as well.
Sup y'all. I had my first transplant about 14 years ago and now am on dialysis, awaiting a second transplant. This is my first time on dialysis and also dealing with another condition so the first couple months were rough. But now I am starting to feel more "normal" and went back to the gym.
I was on some heavy dose of prednisone but I have gotten significantly weaker. I also feel like it takes 2x as long for my muscles to recover, like I am sore for multiple days after lifting.
Did any of you lift while on dialysis? Similar / different experience? What else do you recommend, especially in terms of diet?
This might be a long post so please bear with me.
I started dialysis about 3 months ago. It honestly hasn’t been that bad, although obviously extremely limiting in terms of travel, diet, etc. I’m 34, and awaiting my second transplant. I didn’t even realize how lucky I was the first time, 15 years ago, when I got my transplant without getting on dialysis and finding a match so quickly.
Coming into this second kidney failure, I thought things would move a lot more smoothly. I thought that I would slowly approach kidney failure and my brother would be match and we’d do the transplant and boom in 6 months, I’d be back to my normal life.
Now obviously things are not turning out like that. Back in Feb, I woke up one day with my ankles swollen and I was on dialysis a week later. Up until then, my creatinine had been slowly creeping up but I had no symptoms. Something triggered it all of a sudden.
Even when that happened I was pretty positive. I was like, ok this dialysis thing is a test but I’ll be able to have transplant soon and we’ll be good. Then it turns out that I might be dealing with a rare disease called atypical HUS which causes kidney failure, hemolysis (hemoglobin keeps dropping), and platelets. Until that gets resolved I can’t have a transplant.
Because of this atypical HUS, which is somewhat confirmed by genetic testing, it turned out that my brother can’t donate either because he’s at risk. And because of atypical HUS I ended up in a hospital a couple of times. The doctors are now treating it with this rare drug called ecaluzimab, which apparently is an immunosuppressant and has caused multiple lung infections that have me ended up in the hospital twice in the last 3 weeks and we still don’t know what causes them or how to stop them. And, we don’t even know if this medication is working because I might not even have atypical HUS. But then we don’t know why the hemoglobin keeps dropping.
And then yesterday I learned that even if I go through the donor exchange problem, it can take 8-12 months for me to find a match for my blood type (O+) or maybe longer because I probably have a lot of antibodies / high PRA score.
And I think this last news just broke me. I really wasn’t ready for such a lengthy timeline. It just feels like more bad news after another even after I try to pick myself up and find positivity each time. I’m a pretty positive person overall and I believe in God but I just don’t know what is happening here and I really miss my old life. And sometimes it gets to a point where I don’t even know what the point is in doing anything because I could just end up in the hospital the next day or I still have to come home to this situation.
I am blessed in some ways, I know, where I can live with my parents who take care of me and I can live rent free. My brother comes home every couple of weeks just to be with the family and hangout with me. I don’t have to worry about health insurance for some time. I don’t have to be working right now, although if it is going to take 8-12 until transplant I may have to figure out something. But I haven’t really been in a condition to work these past few months because every day is so uncertain in terms of how I’ll feel day to day.
Sorry for the long post but I am just really struggling to keep pushing or be more content / happy and kind of just lost as to what to do or how to feel.