At my wits end
I have suffered with chronic sinusitis off and on since 2016. In 2017 and 2018, I had 2 surgeries. This was life changing and gave me 6 nearly symptom free years. Unfortunately in Nov 2024 it started to creep back up. I got back to back bacterial infections despite doing the nasal rinses. I got a CT scan and the allergist said it did not look good, especially in the sphenoid part.
Got referred to an ENT again and they prescribed me 2 different nasal sprays. As well as an anti fungal (he found a fungal infection) and steroid for my rinse. I was doing those twice a day. But usually every 2 months it would just return. He found polyps, and we discussed Dupixent. But then my next follow up visit he said the polyps were gone, and that I may not be a good candidate for Dupixent. Since then, he’s sort of given up on me it feels like. He also said he’s worried another surgery wouldn’t be effective. I reached a breaking point when I got another bacterial infection a month ago and I kept constantly smelling a rotting flesh smell. The mucus and smell went away after a week of 2x a day rinses. But the headaches persisted.
I was put on bactrim without him doing a culture, and got a full body rash and hives (which was odd since I’ve taken if before). Had to immediately stop and he prescribed doxycycline. Now 3 days in I’m getting even more headaches on top of my already existing ones, and I think it may be the doxycycline, as this happens maybe 30 min after taking easy dose. At this point I’m hesitant to reach out to him again, but I don’t want to finish the course if it’s making my headaches this bad (I’m on day 4 of 10 days).
I have a new patient allergist appointment this Thursday. The ENT had suggested he thinks seasonal allergies may be the underlying cause (yay central Texas). I have never gotten allergy tested before, but I’m willing to eat the cost at this point. I just don’t know what an allergist can do to solve this in the immediate future. I leave for Mexico City this Saturday and I’m terrified of my trip now. While it seems like such a wonderful city, the pollution there is bad and the elevation is high. I need to bring a neti rinse with me and i’m sure I can find distilled water there. But these headaches are just still so bad that I can’t go if I’m feeling like this. Does anyone have any tips for travel? And has anyone been through the wringer where your providers just aren’t getting to the bottom of things? I just need some sort of immediate solution to buy me time while I can hopefully get to the bottom of this.