u/sympathizings

PayPal: @aliwme
Ko-fi: https://ko-fi.com/aliwme

Update directly from Ali (only possible with help of ChatGPT): https://ko-fi.com/i/IT6L82816VA

Imgur with additional updated images: https://imgur.com/a/ali-october-re-me-cfs-rJ8eij1

“Over a month w/o being able to eat.
More than a month unable to eat, without the medical care I desperately need. This was my condition a few weeks ago. I was already so weak and unwell that I was terrified of what might happen. I am still very scared.

I’m so, so sorry if I can’t answer messages for now. But please know that I read and feel every message, and I’m deeply grateful for every donation, comment, prayer, or thought. Every bit of support means more to me than I can put into words. 🙏🙏🙏🫂🫂🫂🤍🤍🤍

The belt lifts my stomach for gastroptosis and helps with aortomesenteric compression. The passage from my stomach to my intestines is barely 5–6 mm, worsening my gastroparesis, which gets worse with every weight loss.” (Ali’s Reddit is u/Foreign7801)

Ali has Profoundly Severe ME in Spain. She has no income, minimal support, and has been abandoned by social security and medical services.

She is 100% bedridden and unable to care for herself, turn over in bed without assistance, or speak. She has not been able to eat in over a month.

Ali desperately needs funds for caregivers, medication, and other critical supports to avoid starving to death.

Please donate if you can, and share this post to help get her the life-saving support and care she needs. Thank you for any support you can provide.

Image description:

The first slide has 2 pictures of Ali.

Image 1: Ali, a young woman, is upright and smiling as she takes a selfie. She has red curly hair going down to her chin and is wearing a black shirt with a silver necklace. She is holding a bird in her hands.

Image 2: Ali, a young woman, is lying in bed distressed with an eye mask, ear defenders, and a cloth on her forehead. An ear thermometer lies next to her for her fever. A blanket covers her body.

PayPal link

Ko-fi link

Ali has Profoundly Severe ME in Spain, with no income and minimal support from caregivers and family.

She has been neglected and abandoned by social security and medical services.

She is unable to speak, care for herself, or turn over without assistance.

Ali desperately needs funds for caregivers and other critical supports.

Please donate if you can, and boost this post as much as you are able to help get her the life-saving support and care she needs.

Image description:

The first slide has two pictures of Ali.

Image one: Ali, a young woman, is seen lying in her bed distressed with ear defenders, eye mask, and an ear thermometer next to her for her fever. A blanket covers her body.

Image two: Ali, a young woman, is pictured lying on a mattress on the floor covered in blankets and surrounded by pillows. She is wearing an eye mask and ear defenders. End image description.

PAYPAL: @ALIWME
KO-FI: HTTPS://KO-FI.COM/ALIWME

Ali has Profoundly Severe ME in Spain, with no income and minimal support from caregivers and family.

She has been neglected and abandoned by social security and medical services.

She is 100% bedridden and unable to speak, care for herself, or turn over without assistance.

Ali desperately needs funds for caregivers and other critical supports.

Please donate if you can, and boost this post as much as you are able to help get her the life-saving support and care she needs.

Image description:

The first slide has two pictures of Ali.

Image one: Ali, a young woman, is seen lying in her bed distressed with ear defenders, eye mask, and an ear thermometer next to her for her fever. A blanket covers her body.

Image two: Picture 3: Ali, a young woman, is pictured lying in a hospital bed wearing a gown, with a medical IV placed in her hand for medication and fluids. She wears ear defenders and an eye mask.

Slide two has one image: it shows Ali, a young woman, lying in a hospital bed with a gown on, medical IV placed in her hand for medication and fluids, and wears ear defenders, eye mask, and compression gear on her arms. She is distressed/unaware. An incontience pad lays beneath her. End image description.

PayPal: @AliwME

Ko-fi: ko-fi.com/aliwme

I helped lead a campaign on Instagram last month for Ali’s July expenses, which thanks to everyone’s donations and engagement was an incredible success!!❤️

In Ali’s words (voice transcripted):

“From the bottom of my heart, thank you to everyone who donated, shared the campaign, helped in anyway, or simply kept me in your thoughts. You have made a difference in my life that is difficult to put into words.

Because of your kindness, I was able to completely pay back the loan I had to take out to pay my caregivers when they were leaving after the robbery.

I was also able to replace some of the things that were stolen, and I’ve managed to raise almost all of the money I need to cover caregiving costs for July.”

For August, Ali needs ongoing assistance to maintain access to caregivers and other essential needs. She is in constant debilitating pain from hEDS and needs a better mattress and bed that can support her joints.

Please consider supporting Ali’s well-being and safety, whether it’s through donating, sharing, or having Ali in your thoughts. She is very thankful for everything you are able to give 💙

Ko-fi:
https://ko-fi.com/aliwme

PayPal:
@AliwME

Ali asked me to post an update for self promotion day. She is still in crisis. We missed the opportunity to post for June's SPD due to Ali being too sick to give us any updates until it had already passed.

Her life is now at risk and everyone working on her mutual aid has severe/very severe ME so it has been an immense struggle raising awareness for her fundraiser.

Things were a nightmare at the hospital. The psychiatrists forced her to talk for half an hour a day when she can barely say three words. They didn't listen to a word she said and made references to her physical symptoms as psychiatric.

The hospital will no longer admit her, and the risk of being placed in a psych ward is too high.

Back at home, she managed to hire two caregivers (thanks to past donations), but it wasn't enough help. Even just moving her arms to drink from a bottle, take pills, and use a bedpan causes her to crash. She's spent many hours of the day alone.

She could only afford to pay a very low wage, and the caregivers she has lack empathy for her. She's been treated very poorly. Recently, one of her caregivers stole €720 from her while she was asleep. Because of this, she no longer has the funds to pay for ongoing help. She's too unwell to cancel her credit cards, change her passwords, etc. and has no in-person support other than her paid caregivers.

She hasn't been able to sleep for days and is deteriorating fast. She needs funds to pay the caregivers she has and find new ones who actually care and are willing to learn about very severe ME.

In her own words:

"I have too many problems, and my body and mind can't take any more. I think l've already become profound, or I'm very close to it. I'm very desperate, very frightened, and I don't know what to do. Even arranging care requires an enormous amount of mental effort, and physically the support I have is not sufficient. I still can't find enough peace, support, and competent care for my illnesses."

Please feel free to spread Ali's story and spread awareness of her situation to anyone that could be of help. She is near Granada, Spain.

https://ko-fi.com/aliwme

https://www.amazon.es/hz/wishlist/ls/110K4IONUA50B

PayPal: @AliwME

Since last month’s self promotion post, Ali has been transferred to a different hospital where she is being surveilled by psychiatric doctors daily, causing her symptoms to worsen.

She needs 24-hour care and is extremely weak, both physically and mentally. She is being denied access to sufficient IV fluids.

Ali has zero income, little in-person support, and is unable to move, speak, or care for herself.

If you are able, please consider donating to help Ali pay for care, food, and other medical necessities!

(Please note that while Ali’s Ko-fi goal is shown as reached, this is from previous fundraising and Ali still urgently needs donations. She is too ill to update the fundraiser goal but says that all funds from the past year have been used.)

💙