u/the_lila_cab

What were your first symptoms ?

Hi ! For context, i have hEDS, spondylitis and MCAS, so i know i'm at risk for developping SFN, and thus i might be interpreting my symptoms in a biased way.
I've been wondering lately if i might be developping SFN because i've been feeling localised numbness on the tip and side of my big toes and pinky toes, and maybe some mild numbness on the underside of my feet.
Sometimes i can feel some heat randomly going through my feet, it feels like a stream of water. it doesn't burn per say, it's just heat

i already have some neuropathic pain, especially in my elbow (my ulnar nerves get irritated easily), and i frequently experience tingling in my hands, arms and legs, but i usually attribute it to like mechanical reasons i guess. like my arms are tingling because my backpack is too heavy and it's compressing my nerves in my shoulders. or my legs are tingling because i'm sat at the wrong angle. I also have POTS so i definitely think it plays into this.
the pain in my elbows got really bad at some point, so i got an MRI done to check if the nerve wasn't being compressed (it wasn't) and then i went to a neurologist who tested the large fibers with electrical impulses, but he found nothing relevant either.

i also regularly experience some twitching in my face (usually near the corner of my mouth, around my eyelid, or right under my eye).
i also have digestive issues (but, again, i have hEDS so..) and sometimes experience stabbing or electric shock sensations that come out of nowhere.
and i'm sure i'm forgetting other relevant symptoms...

i honestly don't know a lot about SFN and the websites i've visited don't really explain in detail how the symptoms start and evolve. and i have several conditions that can affect my nerves and i've been dismissing my symptoms because of that; but what if it's not my other conditions ?

Anyways, does this sound like it could be SFN to you ? Could you tell me how it started for you so that i can know what to look out for and see if i relate to anyone ?

Sorry for any grammatical mistakes, English is not my first language ?

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u/the_lila_cab — 6 days ago