Convinced it’s CH but missing some key (?) symptoms
So I (F23) have been dealing with headaches that have a specific pattern to them for years now. They happen on the left side around the eye, mild-moderate in terms of severity, they last 15 minutes-3 hours approximately, happen around 3 times a day at the same times, for weeks-months at a time then they will go away for a few months.
The severity of the headaches I experience is pretty mild sounding compared to how cluster headaches are typically described, they still have a negative effect on my life but it’s not excruciating. They have been bad enough to wake me from sleep on occasion. No sensitivity to sound or light. No eyelid drooping or facial sweating, occasionally some nasal congestion.
Of course I’ve had migraines ruled out, I’ve had eye tests, a head MRI and even suspected IIH ruled out. The last specialist I saw was a neuro-ophthalmologist who told me I do not have IIH and that my symptoms align with cluster headaches so I should see a headache specialist. I am in the UK so NHS waitlists are very long and referrals often get lost so I am just seeking some clarity. Does anyone else have a similar experience/similar symptoms to me with a diagnosis of CH? Any advice appreciated, thank you :)