u/travisjoynson

Abused at My Local Hospital

I am currently at the hospital being treated for Myasthenic crisis and their PT person assaulted me the other day as soon as I asked to sit down, with me screaming for them to get off me, that she was killing me, that she legally had to get off me, and she refused, while she continues to suffocate me with a belt for a long time until I collapsed on the ground, suffocating with a NIF of 20, my voice sounding like Mickey mouse from neuromuscular disease, I had to be wheelchaired back to bed, and neurology almost sent me back to the ICU. I filed a complaint and now the hospital is being vindictive and doing everything they can to go against me.

I don't feel safe here. I told them that I don't feel safe here anymore, and that the assault and corresponding trauma is making me worse. I've been on the ground unable to stand multiple times because of this now, and I have several photos of both me and my vas cath bleeding badly.

They are also telling me I must stay to receive treatments even after I was assaulted and abused or I will be going against medical advice and for obvious reasons, that isn't really an option. They won't clear me to go home or transfer me elsewhere.

I asked to speak to the administration, and they played the same dumb office politics. How do I get them to release me for my own safety?

These people aren't helping me at this point. They are making me worse and they won't do anything about it. What the hell do I do here? I can barely walk at all, but these people are not helping me at this point.

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u/travisjoynson — 1 day ago

MG and Gastoperesis

I am currently at the hospital being treated for myasthenic crisis, and receiving plasma exchange and IVIG to hopefully get me stable enough to go back home. When I first got here, I was not able to go to the restroom for several days, if you know what I mean, and multiple doctors and nurses told me that it was likely gastroparesis caused by the myasthenia, which they said means that the little muscles in my intestines were paralyzed, and if that's the case, the plasma exchange should help with it. Well, a few hours after the third session, my intestines started working again, so, it does seem as though that was the case

I have had very severe symptoms for a long time now, but this is the first time that it has affected my intestines, so it seems to be affecting muscles that have never been affected before.

I have also had issues urinating at times, I mean, I'm 35, so I shouldn't be urinating like an old man, but here we are. They have told me this is potentially weakened muscles, or side effects of the pyridostigmine wearing off.

So, I am wondering if this is something that other people here have experienced, and if so, if anybody has any tips or advice about this?

reddit.com
u/travisjoynson — 3 days ago