u/viharis

In the process of getting testing for a genetic disorder, but may have rare form of Lupus. Drs have considered MECFS as well, but my symptoms are all over the place, and I'm young and testing hasnt been able to pinpoint anything yet. Diagnosed with a lot of related conditions and at 22 have been told I need multiple surgeries to repair things like a massive hernia and multiple joints will need replacing before 30.

Always had a super overactive immune system, usually causing a lot of complications with it attacking my other systems and still being impossible to get under control. I can't get the surgeries I need to repair damage done due to it. But recently it feels like my immune system has completely given up and I've been sick back to back like never before.

At least when I used to get sick it lasted maybe a day before my immune system went haywire and it felt like my whole body was getting nuked. Most of my recovery was just dealing with the admittedly miserable crash after. But strep, covid, infections etc recently have been non stop. I have GI and esophagus issues and I can't stop coughing, then throwing up, and sleeping even worse than before. I can't eat. Was already struggling at work with my usual condition but my boss had to kick me out of the office to rest because I looked and sounded so shitty this morning.

I've never experienced this before. Its not like my usual pains have gotten any better but somehow the near constant fever symptoms have diminished even though I'm actually sick this time, and its not my body just eating itself alive any more.