u/warpshed

set list!

set list!

managed to snag a copy of the setlist and got it all signed thanks to their terrific new member matthew. ended up with one of kevins guitar picks too!! im so happy

u/warpshed — 12 days ago

Massachusetts concert

is anyone interested in going to the concert in mass next month? I bought two tickets to go with someone but I am not feeling like going to a concert (its a bit far for me now lol) as fun as oM concerts are. idk how selling tickets through the website works, so bear with me. looking for abt 60 dollars for the two, tickets themselves were 50 for both (plus abt 10 bucks in service fees for each ticket) but it would be nice to cover a bit of the service fees I paid. If anyone has any advice on the best way to go about transferring the tickets id appreciate it.

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u/warpshed — 1 month ago

So confused

i just had my 3 day eeg this past weekend and i am still waiting on my neuro to review everything and provide an answer. however, the eeg tech did translate the recording into a document going over my button pushes and logs and such. i had one episode that weekend with extreme deja vu, making me horribly nauseous and shaky as well as making the left half of my face droop. i didnt get video footage at the time (i usually record myself and i opted out of the video portion of the eeg).
i even asked to see the eeg section of the button push, and i swear to god it looked like a seizure on an eeg. completely normal average waves turning into severe zigzags only in one portion of my brain (would make sense because i believe im having partial focal seizures). But on the document she wrote it says there was no ictal eeg documentation or something? like nothing had been recorded or picked up at the button push.
im just super confused because it looked to me on the recording that i was having a seizure and the brainwaves matched that. i dunno if my neuro will say something else though. i just want answers.. ugh

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u/warpshed — 2 months ago

I have a 3-day take home EEG coming up this weekend. I haven't been officially diagnosed with anything, but based on my notes and videos of what happens to me, my neurologist is pretty sure I've been having focal aware seizures.
I'm both worried and excited (in a way) to get an answer about this all. I'm worried because I don't know how it will affect my future job opportunities and general life abilities. But I'm excited because I've been waiting for answers for so long. When I actually have a diagnosis, I don't have to awkwardly explain what I am feeling to people, and feel like I am a liar for explaining that I might be having seizures. Especially with focal aware, I feel almost idiotic trying to explain it to people sometimes..
How did a diagnosis affect you? Did it get in the way of any opportunities, change any relationships, ruin any aspects of life for you?
I don't even really have a support system over all this right now aside from family. Lacking a bit in friends so it's even more difficult emotionally to navigate all this.

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u/warpshed — 2 months ago

I have my 3-day EEG coming up next weekend. I don't know what I'm going to be doing with myself all those days lol. Is there anything I should avoid doing? (Drinking coffee, doing certain activities, etc.) Is there anything I should TRY to do so there's actually something for the EEG to measure? My neuro is dropping my meds down to half my normal dose for the tests, and I am hoping it triggers something, as weird as it sounds. It's kind of implied by him that I do have epilepsy, but he won't give a definite answer till the testing is over. I do not have convulsive seizures, so it has been hard to get diagnosed. Usually my medication works fine, unless I am super insanely stressed, or if I forget a dose. Does anyone just have any general tips on how to deal with the whole experience? 3 days seems so long when I feel like I can't be doing anything. Hoping my family will just play boardgames with me all weekend or something, lol.

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u/warpshed — 2 months ago