u/writtenindust

I’ve been on Cerelle for just over a year and I’ve noticed that my vagina has become quite dry within that time. I’ve also had 4 instances of ‘UTI’s since last September, where I’ve had feelings of burning, irritation and frequency even though every single urine test has been negative for bacterial growth. And usually those symptoms then ease up for a few months without antibiotics.

I’m just seeing if anyone else has experienced something similar on Cerelle or another progesterone only pill.

Hello all, just a general question hoping someone has a similar experience. I’ve had three or four experiences within the last year where I’ve assumed I’ve had a UTI and been prescribed antibiotics but the cultures have come back saying no growth detected but there is signs of bladder inflammation, could this be IC? My doctor seemed to think it was OAB, but I can go some days up to 5 hours before using the rest room.

Reposting for anyone who missed it.

Just writing a follow up from my previous post asking about consultation advice and I want to come back and say it was a success! I have been approved for surgery!!

I had such a wonderful doctor who took the time to listen to me, to thoroughly go over my entire medical history and to give me all the options available for me without bias or judgement. I have other medical conditions that we need to monitor first so he’s put me on the surgery waiting list for a bi-salp with the hopes that we will have surgery next year. He didn’t push back when I said I preferred the bi-salp to the clips - he gave me the option!! It was my choice!

I want to cry, it was such a good experience especially after this last week as I was diagnosed with Bell’s palsy last Wednesday.

My advice to those going through this experience is to take someone with you for moral support. I took my parter and I think that helped a lot. I also did a lot of research and was firm in my words and how I presented myself - confident in my choice but willing and open to hear what the doctor had to say.

Here to answer any questions!!

Just writing a follow up from my previous post asking about consultation advice and I want to come back and say it was a success! I have been approved for surgery!!

I had such a wonderful doctor who took the time to listen to me, to thoroughly go over my entire medical history and to give me all the options available for me without bias or judgement. I have other medical conditions that we need to monitor first so he’s put me on the surgery waiting list for a bi-salp with the hopes that we will have surgery next year. He didn’t push back when I said I preferred the bi-salp to the clips - he gave me the option!! It was my choice!

I want to cry, it was such a good experience especially after this last week as I was diagnosed with Bell’s palsy last Wednesday.

My advice to those going through this experience is to take someone with you for moral support. I took my parter and I think that helped a lot. I also did a lot of research and was firm in my words and how I presented myself - confident in my choice but willing and open to hear what the doctor had to say.

Here to answer any questions!!

(34, F) So after waiting 11 months from GP referral I finally have my consultation this week to discuss a bi-salp! I'm excited and nervous. My biggest worry is that they'll push the clips on me rather than complete removal of the fallopian tubes. I am willing to push back and make sure they know why I don't want the clips but I've read that the clips are the standard in the UK. I'm in the Suffolk area.

I also have liver adenomas caused by oestrogen due to the Microgynon 30 pill. I'm hoping that this will help my case with me not wanting and not physically being able to take any form of oestrogen. I understand there are other methods that don't pass through the liver, but I don't want to risk it at all when my tumours are deemed large and have the potential to rupture. Even if I did want children a pregnancy would be considered high risk. I don't want children, never have and can certainly say with my entire chest that I never will want them. I am in a stable and steady relationship with a man who also doesn't want children either.

Can anyone share their consultation experiences in particularly the UK?

I'd been having a headache on my left hand side since last Thursday during the UK heatwave. It was a dull pressure type pain behind my left eye, left ear, by my left jaw just below my ear and towards the base of my skull. Yesterday morning I noticed that my smile was lopsided, then realised my left eye wasn't closing at all. We rushed to the hospital where they ruled out a stroke and they've given me a 10 day course of antibiotics and medicinal eye drops.

I'm just here looking for advice really. What can I expect? How can I best prepare myself on this road to recovery? Do you have any advice for me? I was quite upbeat about it yesterday, but now I'm doing my research it seems like this might be here to stay for a while.

I’ve struggled with back pain for as long as I can remember (I’m 33 now) but I’ve noticed in the last six months that it seems to be getting worse and accompanied by new symptoms such as left hip pain, a weird weakness/ache at the top of my bum/base of my spine, my fingers feel warm and inflamed and when I lay down to sleep on my back sometimes my left arm goes numb or gets pins and needles. I also currently have weird aches in my legs. I’m so stiff when I get up from the sofa in the evening as well! My hand and feet joints constantly feel hot and inflamed (but don’t look swollen) and I get random IBS symptoms most days (stinging pin pricks in intestines? Cramps, gas almost immediately after eating).

Could this be fibromyalgia? My mum is diagnosed and I’m on a diagnostic journey myself but there’s a toss up between potentially ankylosing spondylitis, fibromyalgia or another autoimmune disease. I have raised CRP and alk phosphate levels but I do have an inflammatory adenomas on my liver which could be the main reason why these levels are high.

Do you have constant symptoms of AS or do you get moments where your symptoms are less noticeable? I’m still waiting for a diagnosis so it could be that AS isn’t even what’s affecting me, but I’m just wondering how everyone else experiences it.

I had a bad few weeks and then last week was relatively fine, little back pain and no pain in my left hip or buttocks. This week my elbows and hands have felt quite sore. How often do you have flares? Are you relatively pain free between flares? Or is this all in my head and my mind is just playing tricks on me that there is even something wrong 😭

Hello all! I finally had a call today for an appointment for a sterilisation consultation in July. I’m in the UK and was referred in September last year so from referral to consultation it will have been 11 months on the wait list.

My consultation however is with a man. I don’t want to be considered sexist but I am a little bit worried my thoughts and desires to be sterilised will not be listened to. Previous experience will male doctors surrounding my period etc haven’t been successful in the past so I’m wary now. I do now have health conditions that make the choice for sterilisation more important and I’m hoping he will take that on board.

What can I expect from my consultation and how should I best prepare? Any UK folks who can also give me advice would be very well appreciated 💖

My HLA-B27 has just come back negative and is it bad that I’m actually disappointed? I’m waiting for a call from my doctor on the 29th who said depending on the result decides on how we move forward. I’m hoping it’ll still warrant a referral as I’ve been dealing with these symptoms for a while now and it’s affecting my daily life but all my markers aside from CRP and alkaline phosphate levels are normal. Even then my CRP and phosphate levels could be related to another inflammation diagnosis I have of the liver.

I don’t know what to do or what to think, it feels like I won’t be taken seriously 😭

I had an appointment with my physio today who listened to my symptoms and did a few tests, he said the schobers test was positive, but my left hip pain was tendon related and that the pain in my hands and arm weakness could be carpel tunnel. We’re waiting for my full blood test to come back but he did mention that I may still need to be referred to rheumatology regardless.

What does the positive schobers test mean? He didn’t give me that diagnosis in the appointment, I read that on my NHS app notes section.

Long story short I had to come off Microgynon 30 (combined pill) and move to Cerelle due to hepatic adenomas of the liver caused by the birth control pill. This now means I can only have BC that doesn’t contain estrogen. Cerelle was the first pill my GP put me on and so far I haven’t had any other negative side effects. I usually have heavy periods but I haven’t had a bleed on Cerelle since I first started taking it (this is a benefit for me) but on the flip side it’s completely destroyed my sex drive.

I’m on the wait list to discuss sterilisation but there’s an incredibly long wait list to speak to gynae in my area of the UK. Cerelle is working for me in all aspects other than my libido nose diving. I have a very supportive partner who never complains but it’s making me feel unworthy and undesirable.

I don’t know if I’m looking for answers or just a shoulder to cry on at this point.