I feel lost in my life from chronic illness.
I posted this on the EDS fb group in my area too but..
A little bit of a rant today.
After more than 10 years of navigating and managing a million health issues from EDS, it's sometimes hard to believe this is my life. There have definitely been ups and downs, and I'm grateful for the things I been able to experience. But I'd be lying if I said I don't grieve everything that's been taken away...my career, friendships, school, independence, financial opportunities, and so much more. I got sick right when I was supposed to be starting my life.
Lately, my biggest grief has been feeling like I ran out of time and opportunity not because I didn't want those things badly enough, but because I simply didn't have the health, energy, or resources. There was so much I wanted to do, but so much of my time has been spent in bed or on the couch because of severe fatigue.
For those of you living with EDS or other complex chronic illnesses, what helps you feel like you've contributed to the world or to your own life? Do you have any hobbies, projects, or small things that give you a sense of purpose?
I've thought about creating free resources for people with chronic illnesses that could be useful from bed, but then I wonder if AI can generate most of that in a few seconds. I've also always wanted to write a book.
I'd really love to hear your thoughts or ideas. anyone else??