u/z1ish

So I've been recently diagnosed with hEDS. My wound healing isn't too poor from what I can tell, (superficial cuts/scratches usually heal in a day or two and I clot well.) My skin isn't exeedingly fragile, it's pretty typical from what I can see, though it is hyperextensible and soft/doughy. (stretches around 1in on the hand test I'd say.) My goal is to have top surgery first, then vaginectomy/hysterectomy and meta to see how it goes. If it goes well possibly consider phallo later. I've heard some horror stories about people with hEDS needing 10+ surgeries to get everything done. Has anyone had positive experiences regarding bottom surgery when most of the presentation isn't in the skin?

So I'm transmasc (technically intersex and not really female but whatever it's close enough). So I'm just wondering if anyone has any info on eds in the case of ftm gender affirming surgery/general plastic surgery and scarring and/or healing times. Are there certain surgeries I wouldn't be a candidate for? (Eg phallo.) If any trans guy with eds on here had any advice id be super thankful!

So I'm currently the lead in a 2h show by mark twain that is due to open on the 22nd. We recently got a new director who is used to working with more mature casts (so to speak) and didn't hound people to learn their lines. (As our old director did.) So essentially it's two days before the opening and multiple people are going to be on book. I am not and a lot of the others won't be, but the show isn't really a show in which you can rely on the rest of the cast to improv your lines for you. To be fair, we only had a month and a half/two months to put the whole thing together. Our director suggested a dramatic reading, which NOBODY wants to do. We put so much effort into the blocking, costuming and set, and it's imo pretty good. (Set and costuming are both pretty professional/intricate.) The issue is that people don't know their lines. Has anyone had experienced with fully blocked shows where people carry scripts? How do you make that sort of thing work well? Sort of a last ditch effort to ask on this sub but it's the first lead I've ever gotten and if we have to do a dramatic read I might actually lose it. There's much to say about what SHOULD have been done, i know, but does anyone have ideas on how to shove this back together? We would reschedule but it's not possible for a bunch of logistical reasons. Thanks.

EDIT: thank you all for the replies! I think the plan will be to have 1-2 people on book for the production. Our rehearsal today with most people off-book (besides 1-2 people) is going very well. Our director has conceded that if we feel comfortable putting on this show as is, then he won't stop us. Thank you all so much for the advice! Ultimately I think it'll be a great show, I just had to stop psyching myself out and get out of the mindset of memorization = good theatre.

So I've got an upper curve of 31 degrees and a lower curve of 25 degrees. I am also diagnosed with hypermobile ehlers danlos and physical therapy has been helpful in reducing pain. My growth plates have mostly fused at this point, but my geneticist (who was worried about kyphoscoliotic EDS which would cause the curve to continue progressing, though I don't have the genetic marker) mentioned surgery. I know the surgical threshold is 40-50 degrees typically, but in s-curve scoliosis, do you go based on the combined measure or each individual curve? I doubt I'll need spinal surgery (unless that one nerve in my back that it's pinching gets worse lol.) Thought I'd ask if anyone knows/has had experience with surgery regarding two curves.

I was recently diagnosed with at least hEDS or possibly Marfan's/kEDS. (still waiting on genetic testing results.) My dental hygiene is very good, I use flouride mouthwash + toothpaste, floss every day, don't drink sugary drinks over long periods, ect. I had no gum bleeding or plaque when I went in for my last cleaning, but I still had 14 cavities, all between my teeth. Since then I've been flossing more frequently and brushing my teeth 2+ times a day with prescription toothpaste. I'm being referred to a dentist (more specifically dental department of a major hospital) that specializes exclusively in dental conditions caused by genetics. Has anyone else had experience with weak enamel or decay without seemingly any reason? And given that I also have reactive hypoglycemia in POTS, does anyone have anything that has worked for them in terms of keeping up blood sugar without damaging teeth? I've started to switch to sugarfree candy for my sweet tooth but that doesn't deal with the blood sugar issue.