r/Adhesions

I am 26 if that matters

2021: first obstruction, solved via surgery(diagnosis: adhesions with obstruction)

2023: second obstruction(ileus, unspecified)

2026?:third obstruction(ileus\subileus)

doctors didn't really explain much to me nor did I ask questions, I was really depressed and down whenever I was admitted to the hospital.

the only common thing is they asked me what did I eat each time I was admitted
and one doctor told me to avoid insoluble fiber

My issue is, is this really gonna make sure I don't get them anymore? and most healthy food contains fiber, so I have to trade my long term health for these short term gains?

Like I was planning to go to gym and gain weight\muscle but that is basically impossible because I risk obstructions if I start eating too much and not to mention again, I have to avoid healthy food

Also personally the common factor for all the obstructions, was that I was eating a lot of nuts\seeds around those days I got the obstructions, so it all points to the food being the cause

I also doubt that I needed surgery the first time around, my pain stopped after they gave me an NG tube but they still went ahead and did the surgery

Second time they also said I will need surgery, but they changed their mind after a couple of hours

I am constantly worried and can't stop thinking about this and not only do they put the NG tube they also put urinal catheter and I just know this will keep happening to me, I have been unlucky my whole life

I am sorry for the rant

Hi, I know why everyone is on this subreddit as a fellow adhesions-sufferer, but I haven't seen this discussed on here. I know there is always another "big breakthrough around the corner" as seen with TTX-333 from Temple Therapeutics, but this hydrogel that's in development from Stanford's Spark-Team looks really promising. I also know research pipelines going from mice-/porcupine- to human-models can range from 4-12 years and are a long and arduous road, but maybe this could be something worthwile.

Convince yourself and look at the post-op pictures they made in the results tab.

On that topic, in what ways can we directly support research projects like this except for donating our bodies to science or trying to convince politicians to spend more on scientific innovation? Is there a hotline or something? xD

I have abdominal adhesions that caused pain, ibs type symptoms, bleeding, and other digestive issues that are extremely disruptive to my life. Ive had scopes and imaging and im wondering if its even worth it to try harder to get a diagnosis of abdominal adhesion disease. My gi says that its "normal" to have adhesions after all the surgeries ive had and that the only way to get a diagnosis is to have an exploratory surgery and no surgeon will do that since ive not had a bowel obstruction before. Should I bother getting a second opinion? The only thing ive been offered is a lysis of adhesions surgery that will cause more adhesions. Am I just supposed to live like this?