r/CML

▲ 5 r/CML+1 crossposts

curious about mobility aids

hello all! i (25f) am almost two weeks in of taking 100mg dasatinib daily after being diagnosed with cml mid last month and experiencing some not so great side effects. i experience both muscle and bone pain most severe in my legs, and i stay mobile, (walking, stretching, etc.) but it seems to honestly make the pain worse even without overdoing it. i know the first bit of a tki is expected to be rough, but i went to my towns yearly fall festival this past week and kept having to exclude myself to take a break or sit on the ground to rest my legs from how intense the pain gets. there are nights when all i can do is try to massage my legs, prop them up, use my heating pad, and cry, but i don’t want to find myself in that situation in public where theres simply nothing else i can do. just curious if anyone uses any sort of mobility aids when there are rough days but shit still needs to get done

reddit.com
u/Impressive-Tax-8716 — 4 days ago
▲ 30 r/CML

6 Month Update

Hi everyone, hope you all are doing well. I posted 6 months back about taking a swing at TFR. Just checked my 6 month blood test. BCR-ABL is still below 0.003. super happy with the results, I am now switching to every other month blood draw for the next 6 months. Hopefully I'll be back here in 6 months with another positive update. Take care of yourselves and keep on living!

reddit.com
u/Negative-Ad-6651 — 8 days ago