r/CeliacLifestyle

▲ 3 r/CeliacLifestyle+1 crossposts

Vitamins???

Hi all. I’ve been gluten free for a few months (suspected celiac) and have noticed that my body doesn’t tolerate most vitamin capsules well. The only thing that actually makes me feel better is children’s multivitamins. Anyone know why that is? Any tips on how to properly replenish my vitamins? Thanks!

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u/wishy_washy9708 — 4 days ago
▲ 5 r/CeliacLifestyle+1 crossposts

Im not sure what to do....

I 20f am not celiac but my partner 26m is. Today is Tuesday and my boyfriend has been sick on and off since Thursday night, he was okay for a bit on Saturday but Sunday it came back. He's been vomiting, having other stomach problems and hasn't really been able to keep down anything including fluids. He is currently uninsured and refuses to apply for medical insurance in our state (OH) because he thinks they can't do anything to help. I am worried because I don't think he's getting better. I'm not sure if he ate something with gluten the only thing that could have possibly done it was when he drank some of my oat milk but it's marked gf but it says there's a possibility of cross contamination. I've been with him about a year now and he's been sick before from gluten but never this severe. I have some basic medical knowledge as a phlebotomy student and I think he is deficient in some nutrients that may be causing him to get sick so often because of his celiacs breaking down his immune system. I have been unable to find a nurse helpline that doesn't require insurance to ask for advice. I've been thinking about just calling an ambulance to have them come for him but I think he will just refuse to go. He's been missing work and I can tell the stress is not helping his condition. Sorry for the sporadic post I am super worried about him and I am completely out of ideas of what to do.

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u/JadedIndependent1993 — 6 days ago
▲ 8 r/CeliacLifestyle+1 crossposts

Need your gluten challenge stories

Tell me when your symptoms kicked in, how severe they were, how yall dealt with them. And how long it took to heal afterwards

Today I started my 2 month gluten challenge (for biopsy) after 2,5 years of diet. I ate 4 kfc chicken bits and fries, + blin with ham and cheese 5 hours ago, and I feel like.. nothing? Although before my diet I experienced gut pain, brain fog, got bloated and etc immediately. Even during diet, when i ate something with “may contain traces of gluten”, I felt hurricane in stomach immediately.

Now I find having little to no reaction strange, back then it was severe… Is it just possible delayed? We’ll know tomorrow, but i’m very confused now

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u/Steampowered_FiHSie — 5 days ago
▲ 9 r/CeliacLifestyle+1 crossposts

Partner 40y/o Dx - need meal ideas please

As the main home cook, I am struggling. Not sure if I am helping or making things worse. I bought Trader Joe’s gluten free bread (I read it was considered a better brand/taste) I finished the last of Dave’s Killer Bread. I tried to start cooking everything gluten free. I didn’t realize Japanese curry bricks had gluten (served that for dinner and lunch) I ate the rest as soon as I realized it.

He has still been experiencing terrible stomach aches and he said BMs are not great.

How long will it take for the BMs to regulate? Would probiotics help? I feel stupid asking for easy meal ideas, I get that gluten isn’t a main food but it’s in a lot of our used to be grocery items.

Would you say miso is ok to eat? We have made boiled eggs on top of white rice with miso/coconut amino sauce. But still - his everything just doesn’t feel right (his feedback) any advice would be appreciated.

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u/RavensCoffee — 10 days ago
▲ 4 r/CeliacLifestyle+1 crossposts

Finding doctors who take celiac seriously, looking for opinions.

Hey! So for some back story, I (22f) have struggled with chronic severe constipation my whole life. For the longest time I thought it was normal, my mom was always secretive about that stuff so I grew up thinking oh girls don’t poop lol! When I say severe, I would go weeks & weeks. In college is when I started to be concerned of bowel movements as a former roommate was studying nutrition. This year, I had an emergency situation with my constipation that required an ER visit and I won’t go into the details.

Due to my circumstances and insurance, I wasn’t able to receive proper care from a doctor long story short (military) and I was doing a lot of self research.

I ended up having a miscarriage in December that wrecked me and caused a lot of trauma. Shortly after this timeframe, I started developing insane abdominal pain, bloating, joint pain, and fatigue associated after eating meals.

I ended up self diagnosing myself basically with IBS-C so I tried the LOWFODMAP diet to gather information to give to my doctor. I have since moved since college & now in a location I can receive care but even that took forever to organize.

I tried the LOWFODMAP diet as I had assumed my problem was onion, garlic, or cheese.

I cut out gluten but was eating sourdough and my problems never went away. The pain would get slightly better but I would eat a bland sourdough sandwich and feel the consequences.

So, I fully cut out gluten. I was being super careful & 48 hours after cutting out gluten my bowel movements went to normal & I literally lost 10 pounds of straight poop. TMI apologies.

I had basically pinpointed my issue with gluten. I ended up going to a semi fast food restaurant that handled my lettuce with unchanged gloves & I got super ill about 20-30 minutes later.

The pain associated with gluten exposure is a very specific pain, it’s not just a belly ache. It feels like my stomach is being pumped with air where my belly just inflated and there’s not way to get the air out and no way to suck it in & all at the same time someone is twisting and pulling my intestines. Which develops into tight and severe joint pain which makes it hard to walk. Followed by fatigue that almost feels like the flu where I can’t get out of bed.

So the pain definitely sticks out like a sore thumb where I know I don’t just have a belly ache from eating too much / too fast or something like food poisoning.

I was finally able to see my new primary care who told me this was normal, I didn’t mention being concerned of celiac. But she told me gluten is an inflammatory & these symptoms were normal. She also stated that she wasn’t going to test me for celiac as she has only had 1 patient with true celiac and it is extremely rare. I asked her if I should stop eating gluten & she said yes.

My roommate has severe symptomatic celiac, developed in her 20’s & told me that that is contradicting because technically people with gluten intolerances can eat small amounts of gluten. Neither myself or my roommate are doctors so I took that with a grain of salt.

But my doctor tested me for my thyroid, for autoimmune (lupus) & rheumatoid arthritis all came back negative.

After my appointment, I got Italian ice from a supposed to be allergen friendly location & found a crumb of graham cracker. I panicked but I pulled out the piece & kept eating because I was thinking oh well I don’t have celiac. About 20-30 minutes later I got sick.

So, I took a muscle relaxer to fall asleep & my doctor said that was fine to continue if I get glutened.

My mom is frustrated with me because she thinks I should trust the medical professionals but I am wondering if I should give up trying to get answers or just go with it.

I’ve been telling restaurants I have celiac because if it’s just an intolerance that don’t take the same precautions & I feel like I’m lying - which I am. But I’m so frustrated!!!

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u/InfamousAd5671 — 11 days ago