r/Hypotonia

Hypotonia baby

Hi everyone. I have a question about your children's cognitive development. My little boy has had problems with low muscle tone since birth. He was born in August last year, but he was premature, born at 34 weeks of pregnancy. He is almost one year old based on his birth date, but his corrected age is 10 months.

Since January, he has made tremendous physical progress. Back then, he couldn't even hold his head up, and when placed on his tummy, he could only lift it for a brief moment. Right now, he can get up on all fours and rock back and forth. A few days ago, he also sat up on his own for the first time, although it was a supported sitting position with his hands propping him up.

What worries me is that his cognitive development seems to have stalled. He doesn't know how to wave goodbye or clap yet. He responds to his name only when he feels like it and isn't busy doing something else. If I ask him for a high five, he'll hold out his hand for me to give him one. His eye contact used to be better when he was lying on his back and wasn't able to move around yet. Now he tends to avoid eye contact and isn't interested in interacting with me. He prefers moving around, touching objects, and putting them in his mouth.

What was it like with your children who had hypotonia? Did they eventually catch up cognitively? I forgot to mention that my son babbles and says "mama" and "dada," but he doesn't yet understand the meaning of those words.

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u/Mortadela1990 — 8 days ago
▲ 3 r/Hypotonia+1 crossposts

How firm does baby feel at 4 months

My baby has possible hypotonia but so far is meeting milestones and we’re still waiting to see a paediatrician to get an actual diagnosis.

When I hold other people’s babies that are around 6 to 9 months, the babies feel firm to hold with lots of muscle and fat. My baby feels slightly limp even though he’s quite strong. I’m just wondering if anyone has a four month old and knows what I’m talking about? Does your baby feel very firm or still soft like a newborn?

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u/SOL_lettuce — 10 days ago

Gift idea

My nephew has severe hypotonia, he’s been in the hospital since he was born and has a tube in his throat as well. He’s slowly been allowed to come out for short times from the hospital and it’s his first birthday this weekend, his parents have invited all the family. My question is for parents of children with hypotonia, what is a good gift he will actually be able to make use of? He is currently able to move arms and legs slightly but with no control and is able to sit up a bit with support.

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u/OrdinaryBeach2294 — 11 days ago