Why isn’t there more talk on MODY?
Hello everyone!, I’m 19 from Ontario Canada. I want to share my story on how this process has been for me. So I apologize if this is long winded.
At 14 I was in DKA, as the doc put days away from death. I was treated as a type 1 was on fast and long acting insulin. I did antibody testing to determine if I did have type 1. And it came back that I wasn’t granted this was years ago now so I don’t remember fully the numbers.
After that I was told by paeds that they were going to treat me as a type 1 but that I was actually a type 2.
I was still taking insulin. My sliding scale was up to 30u long acting and various for short acting. I stared to decrease my insulin with paeds and eventually got down to a low dose of both but than needed to reup it.
Once I turned 18 I saw an adult diabetic doc who I don’t think is an endo but she said that my numbers and a1c were great and that I needed to decrease but I actually wasn’t taking any insulin!.
I’ve only recently found out that I may have mody because my primary care doc put that in for health conditions for a college specific medical form. I’ve still yet gotten genetic testing to see exactly what type of it I have.
I’m hoping to find others around my age who have experienced it. I’d like to meet people with this apparently rare form of diabetes!.