r/Morgellons

I'm hoping to get an updated thread going on things everyone is doing to help deal with the symptoms. I found that nothing really works for me. I'm hoping to get more ideas on things to try from people who are dealing with this nightmare.

To clarify, in accordance with rules, I'm not looking for med. advice, just personal experiences.

So, what are your "go-to" ways to manage this?

I take Adderall -- I've been taking it for ADHD since I was in the 2nd grade. I am now 33 years old. If I don't take my medication, I'm faced with a very difficult life and career.

It hasn't ever caused problems in my life before.

Please take note of the above sentence. I also believe I have Morgellons Disease, and after I made that discovery, it came to my attention that I may have first been infected about 10 years ago with more of the minor symptoms (For me, it was a very strange, unordinary post-nasal drip). Then three years ago, I developed a very bad abscess on my tailbone that caused bad infection but was subsequently healed after plugging it and then removing it. Now, three months ago, everything kicked into full gear including more lesions, plus additional symptoms (everything else associated with Morgellons). I feel like I'm 80 years old, showers make me feel like I ran a marathon, Goat Milk soap is the only thing I've personally tried that has helped.

It's effecting every system in my body I think. Brain fog is horrible, why does it cause brain fog? Do I have swelling around my brain? It's in my lungs, my sinuses feel like they are filled with dried-up super glue attached to the surface of my sinuses, as well as my ears! Yes I've tried Megan's Protocol. I shaved behind my ears. They bleed profusively whenever I do -- but black stuff did come out and my ears do feel like they are little less feeling they are being held hostage by the invisible shrink wrap that is encasing me inside of my own body.

I'm talking blue fibers, increased hair loss (yes they waved around on my head like I had no control of it, and yes, I know going bald is real, but I have uncanny feeling that some of the more increased periods of me losing my hair were exasperated by this thing, urinary retention/hesitancy without prostate issues present, libido issues, my skin is either radio-activated or electrically charged or maybe even magnetized, because when I chip away at the fake skin suffocating my thumb with fingernail clippers, the dead skin that I clip shoots straight up in the air and moves depending on where I hold the finger nail clippers (it could just be that there's so much fake skin compacted in there that when you clip it, the tension is so strong that it makes it fly upwards like that.

And the consensus for non-believers is that my Adderall is causing this? OK, I'll play along for a minute. Can the use of stimulants actually cause these physical anomalies/phenomena to manifest as a result of their use, or is the consensus that the Adderall causes the perception of these things manifesting. There's a big difference, and if the consensus is the latter, then that is upsetting because it is essentially concluding that I am either A.) Delusional, B.) Hallucinating, or C.) Lying, and if that is the consensus, then that is both terrifying (for me) and very unfortunate.

I would love to talk with people who are currently going through this. All are welcome though.

hey I’m wondering if anyone here has experience with infected root canals and if removing the teeth made symptoms/life easier?