r/MultipleSclerosisLife

Good morning to my MS buddies. The only people that understand what we live with.

I saw a new Neurologist because his bio states - “...has an interest and expertise in Headache disorders, Migraines and Multiple Sclerosis.”

I mention that because he is sending me to other Drs to determine if issues I'm having are caused by MS.

Told him about the sudden urgency I feel to urinate. Sometimes I can't empty my bladder which requires many trips to the bathroom.

He said I'm having internal and external urethral sphincter spasms & temporarily put me on Oxybutynin CI 5mgs. He said I need to see a Urologist to determine if it's being caused by MS.

A few yrs ago I had optic neuritis. Now I have black dots in the same eye. These are different from the floaters everyone gets now & then because they are black dots. I keep thinking bugs are flying around me. They don't affect my eyesight but are almost constant & I have had them for 4 months. When I told my Neuro about it he said see an eye Dr.

My main question for you all is - has anyone seen a urologist for bladder issues only to find out it's MS & the Neuro gave you the correct Rx? I don't want to spend time & money going to another Dr that's not going to do anything different.

Thanks everyone. Have a great day - if that's possible with this awful disease.

I started experiencing symptoms of MS in around September of 2024 although at that time I did not think it is be ms I thought all
Of my symptoms were singular things and not actually connected, in February 2025 I started to connect the dots and think that this could actually be MS or something neurological, my gp did a referral for neurology but it was rejected. In the summer of 2025 was the height of when my symptoms got really bad I went back to my GP distraught and almost begged for a neurology referral, gp made the referral and this time it was not rejected and now in October 2026 I finally got the appointment, I talked through my symptoms with the neurologist I had a list of timeline of event and also copies of all my consultation appointments with the GP over the years. The neurologist almost immediately said he would send me for a brain and spinal MRI I was shocked in some way I was expecting him to suggest we do a blood panel first as to rule out any other conditions, I just want to see if this is normal for those who have been diagnosed with ms?

Briefly My symptoms are but not limited to:
Speech and memory issues
Difficulty swallowing
Back pain
Leg pain
Foot drop
Lhermitte’s sign
Eye pain
Legs feeling very heavy like I have weights on them
Bladder issues
Ms hug

Any advice would be greatly appreciated