r/MultipleSclerosisLife

Sorry for the depressing start to the day...

I'm on ocrevus and I have had back to back chest infections / ear infections / constant colds / coughs and then it results in costocondritis where it feels like my chest is being squeezed and every breath is a sharp pain. ( Not MS hug)

How is this any better than not being on treatment when I have little enjoyment of life? I can't play with my kids, do my own hobbies, hate socialising because I'm constantly coughing and I feel like people don't want me around because of it.

I feel like my husband is fed up of hearing how I feel shitty (he's not said anything and he's very supportive but how can he not be fed up or bored of it by now?!)

I'm otherwise experiencing zero ms symptoms, which is really positive! But I can't see how this is any better ?

Since the middle of 2024, I've suffered neuropathy in my feet; I long suspected that it began as a result of being off my infusions and that getting back on the treatment would resolve the nerve pain. Sadly, after getting back on the Ocrevus, the problem didn't go away.

Even before getting back on Ocrevus, I was on gabapentin. I wasn't happy with the results, so I switched to pregabalin, which has been nice, since I also have anxiety. I've also been using capsaicin cream for the past two weeks, but it hasn't been as effective as I'd like, even applying it three times a day

Moreover, the neuropathic pain is even more severe when the cream wears off, and applying over and over throughout the day is tiring.

That all being said, for those of you with neuropathy, what do you use for it?

And is your given treatment regimen enough to completely eliminate the pain, or does it only lessen it?

Does anyone else with MS experience anxiety and shortness of breath almost daily?

Lately I’ve been dealing with a constant feeling of anxiety along with shortness of breath/tight chest sensations, and I’m trying to figure out if this is something others with MS experience too.

Some days it feels physical, some days it feels more anxiety-related, and sometimes it’s hard to tell which comes first.

If you deal with this, what has helped you manage or relieve it?

I’ve been dx since 2021.
I’ve asked my neuro to give me baseline cognitive tests.
The appointment is in June, I made the appointment about a year ago. It’s at a memory care clinic (hilariously located in the office next to the MS neuros and infusion office)
I was told over the phone while scheduling the appointment, that it was an “all day appointment”.
I’m assuming there will be some basic memory tests or something like that.
Has anyone ever done this kind of testing and what was it like?
I’m low-key panicking that I’m gonna be stupid.

Well it finally happened. I drop things all the time at home. Like every single day. I have done it when visiting relatives but nothing major.

Today while visiting Epcot, I got a fun new drink to try. I got to a table with my food and drink and promptly my hand just let go of the drink. It spilled all down the front of me, my rollator, the floor, the table. So embarrassing!

I'm sure tomorrow it will be funny, and maybe now I won't be so paranoid about it since it's finally out of the way. But major public dropping things and making a mess? Check!

I just got diagnosed with RRMS in January, and I hate to post asking for help or guidance but turns out MS hotlines are closed on weekends, and I’m typing this from rock bottom.

I’m F27 and my spouse is M32, I was not sick when we started dating however I am no stranger to poor health. This RRMS diagnosis came in December 2025, and my mental health plummeted equally as fast. I see my symptoms burning out my boyfriend, we live together and I’ve caught myself trying to hide how bad it is to avoid him getting stressed more. This weekend he had to leave a boys trip because I ended up in the ER for a flare, and today I can feel the resentment. I still barely understand this myself, and maybe that’s how I’m making it worse.

I had an Ocrevus infusion in February, and I’m currently taking baclofen, and lyrica for my symptoms since I primarily experience burning/biting sensations in my neck and headaches/facial nerve pain, sprinkle in some brain fog and confusion. I’ve also developed double vision and struggle with weakness. I feel awful even writing this out because I know there’s worse, but I’m essentially crying out for help.

I’ve turned 180 degrees into a new person he can’t stand (his words), and the worst part is he isn’t wrong. I’m depressed, I haven’t accepted MS, and I’ve lost 20lbs from not eating, and I’m angry this is happening. He’s burnt out, I’m burnt out, it’s a vicious cycle I can’t figure out a way out of.

Does it get better? I don’t know how to accept that this isn’t going to go away, and I need to come to terms before I lose my only support. I feel alone so I came here, maybe I’m hoping to hear how other people have handled this? Not feel alone? Idk, I’m alone in my own home asking for community on Reddit. :(

How common is vertigo in MS?