r/NDPH

Does alcohol take away your headaches too? While I’m aware that this will only do more harm than good it’s the only relief I get. Zero pain.

My headache go up and down in my over 3 years now I had so many moments where I thought okay now they will be finally over and than they come back..

There has to be a solution for us all, is there no way we can all somehow work together on finding a cure ??

I read that the nervous system is signaling pain even though there is nothing causing it, so somehow we need to convince our nervous system there is no pain ? Maybe I am thinking it’s that easy but I mean I guess everyone of us would be thankful having a 2nd life if they get cured because this is fucked up.

Is there anyone out here that have thought the same? Can we gather success stories (no reliefs, only 100% health) and somehow manage to find our way out of this!

Let’s come together and fight for our freedom of having 24/7 headache!!

ive always been an optimist but its getting real fuckin hard trying to be optimistic these days. i was diagnosed when i was 13 years old and im going to be turning 19 in a few months, i had hope for a while that itd go away eventually but i feel so lost at this point. its robbed me of everything i used to love and the pain just keeps getting worse each year despite the ungodly amount of medications ive tried. i had a chance of playing college football but was forced to quit right when i was starting to get close to my goal, i had to decline a 130k scholarship to an art school i really wanted to go to because im physically unable to leave my house half the time, and i cant even enjoy the rain anymore without feeling like my heads going to split in half. my brain simply doesnt work how it used to and its incredibly depressing to think about. how am i supposed to come to terms with the fact that i may never be able to live normally??

I know there are some old posts (years old) where people have posted abiut getting jaw surgery. One of the posters said it solved their headache. Then multiple other people were saying they are doing it too, but none of them replied what happened after.

Due to sleep apnea, I tried a dental device, but it completely messed up my jaw and my headache went through the roof. I am now getting TMJ botox, which helps a little bit. Makes really think that my headache actually has been from TMJ for the last 20 years. Looking for results from people who had jaw surgery for NDPH.