Any lifetime sufferers? For most people it sounds like it has a sudden onset with a specific cause? I've had PET my entire life in both ears, or at least as long as I remember, definitely since I was 4.
One summer when I was almost 9 year old, I got a sudden ear infection and my eustachian tubes were super closed, but after I cleared my ears using hydrogen peroxide it was so weird and different. Every time I yawn or swallow my ears clear and every time I sniff they close or like "lock" into place. Since then, I didn't tell anyone even though it was a weird sensation because I have crazy health anxiety and it makes me really avoidant to healthcare. But, last night, I looked up my symptoms and found lots of posts describing similar experiences. Does this seem like PET or something else? Also, does it ever go away? Obviously I've had it for a big chunk of my life (booo) so for me this is "normal" but I want to not have to deal with it. Are there treatments?
I have had what I think is PET for about a year now. Lost 8kg rapidly a year ago due to depression and on top of it all had a surgery for otosclerosis in my ear. Great combo, I know.
Anyways, since then I have had bad autophony of my voice in that ear and a feeling of blockage. At first I thought it was the surgery causing this of course but my hearing has improved since the surgery so it looks like it worked the way it should.
Anyways to my question, it seems that I can alleviate my autophony by pressing with two fingers below my ear just where the jaw starts. If I keep pressing that spot my autophony is almost completely gone. Anyone else experiences this?
Been dealing with PET for over 1.5 years now. Started after getting a balloon dilation for an obstructive Eustachian tube. My symptoms are a lot better and are not constant like before however my ear does still open up every morning within an hour or so after waking up. Caffeine and stress definitely make it worse. By the afternoon/evening my ear feels completely normal. The cycle restarts in the morning. I just want to know if there is chance this will ever go away or is this most likely my new baseline. I do have TMJ but it’s been controlled for years, I see a specialist. When my ear is open I hear my voice and breathing, when’s it’s like that I don’t even want to talk to anyone because of how distorted and loud my voice sounds in my head. Putting my head down only helps while my head is down, the second I am upright my symptoms return. I have used Patulend although I wasn’t a fan of it irritating my throat. I prefer to just use hypertonic saline spray when it’s bad which will give me a few hours of relief. Eating completely gets rid of symptoms too. Has anyone else experienced this and had it revolve?
Last week I was diagnosed with pet and I'm trying to understand what exactly happened. 2 years ago I was diagnosed with mold toxicity and got really sick. I left my apartment for a while and moved North I didn't realize that being a relatively higher altitude but not by much could cause issues.. at the same time I was dealing with mineral deficiencies and absorption issues ETC.. I started to get a lot of pressure and I wasn't able to pop my ear.. eventually it popped and then it was okay . After the winter started to get worse again and when I came back home it just progressively started getting worse.
For the past few months I've been dealing with extreme pressure in my left ear and in my left eye to the point of vision issues dizziness sinus issues swelling. I can't even see straight because of all of the lack of drainage. I'm unable to take medication or you sprays because of severe reactions. My ENT referred me to neuro autology. I didn't even know that existed. She said that I have very wide open eustachian tubes and that's pretty much causing a lot of my issues. I also have severe TMJ and occipital issues. I've been doing all the therapies and everything else. I do still have absorption issues and deficiencies because of all of the mold consequences.
I have an appointment with the specialist at the end of the month and she said that perhaps he could do the cigarette paper method or another non-invasive procedure that could alleviate some of the pressure in my ear and allow things to flow better.
Can anyone give me any insight or what to expect? I just want to feel better.
finally tried it. did it once. fully sealed my tube up for 24 hours. magical to not even hear the slightest clicking when swallowing, but also a little disconcerting tbh! don't want an ear infection; better if the tube is working but not too open. anyway, since that one use due to things getting worse than usual, i've been able to manage with hypertonic saline again, but it's nice knowing i've got some serious firepower sitting in my fridge when i may need it. people are right that it stings, though. such an odd place to feel intense pain, too. but yeah, anyway, pretty effective for me i guess, at least for now.
I’ve recently started wondering if y’all also developed PET around COVID times?
I had a mild covid infection in march 2020 and lost my taste and smell for 6 months, then I got the Spikevax shot in August 2020. I noticed my first PET flare sometime in summer 2020.
Wondering if anybody else has a similar timeline and if it’s at all related somehow