Discouraged
I know this is one of the subs I can talk about this to even though this might not be "ablism" per se.
I was recently talking to my older sister (who I have very low contact with) about stuff going on in her life and she asked me about mine.
I have been having some hard times getting into a GI specialist (win! I have an appointment) and a neurologist. For the neurologist it's been nearly half a year experiencing PNES or psychogenic non epileptic seizures daily and I have been denied by all three and the fourth one still hasn't called to set it up.
But my sister went on and on about how "big pharma is poisoning us" and "you should stop your medication immediately."
Thing is, I have been diagnosed with HEDS and fibromyalgia and my pcp thinks there might be POTS and FND and I think I possibly have gastroparisis. My medication helps me with my pain and helps me sleep without three hours of pain management. Then, she said that I should stop doing the thing that is getting me nutrients (I drink protein shakes because I have one hell of a time with eating solid food and barely able to get ANYTHING in my stomach without having neausea and dry heaving and rapidly losing weight) and said I should try drinking smoothies with all these ingredients I HAVE NOT BEEN ABLE TO EAT instead.
And as much as I love my support group, she is definitely one of the ones that exhausts me because she won't listen to the fact that there are things I simply cannot do or can't eat and says that I'm making excuses while simply telling her that I just.... can't. If I'm in my wheelchair or with my cane she says I'm being dramatic. And I know I don't owe anyone an explanation but it's like... please can we stop commenting on how I'm "letting myself go" when I am doing everything in my power to stay healthy and despite my pain, doing the things I have to do???? I'm exhausted having to tell people that I'm sick and have a lot more to worry about then their options of "eat healthy" and "do yoga" or "have you tried taking vitamins to cure your pain disorder?"