r/bileductcancer

My mom passed away at home earlier tonight after being diagnosed three months ago. By the time it was discovered it was already at stage IV. It was so hard seeing her go from an active and independent person to becoming bed ridden and nonverbal within that time.
She stayed in hospital for a little while but we eventually brought her home with home hospice care. The chemo did nothing to slow the growth and was causing more harm than good. We wanted to respect her final wish of wanting to pass away at home surrounded by the ones she loved.
The mortuary asked us to prepare her for transport. My dad and my aunt were overcome with grief and had to step away. Helping the hospice nurse wash her and move her lifeless body to change her diaper was the hardest thing I’ve ever had to do. I hugged her for a very long time before they put her in the back of the mortuary van and took her away.
When I was a kid my mom would quote Winnie the Pooh and say, “If there ever comes a time when we can’t be together, keep me in your heart. I’ll stay there forever.”
This night has been so painful, I felt like I had to tell somebody and came across this subreddit.

hi. welcome. I created this community after my dad’s bile duct cancer diagnosis, hoping to provide a supportive place where no one has to face this journey alone. Whether you’re a patient, survivor, caregiver, or loved one, you’re welcome here.

Bile duct cancer (cholangiocarcinoma) can feel overwhelming, and no one should have to face it alone. this community is here to offer support, share experiences, ask questions, and connect with folks who understand.

While members are welcome to share their personal experiences, this subreddit is not a substitute for professional medical advice.

if you’d like to introduce yourself, you might share:
whether you’re a patient, survivor, caregiver, or loved one
Where you are in your journey (if you’re comfortable sharing)
any questions or concerns you’d like support with
Above all, please be kind, respectful, and supportive. we are here to listen, encourage, and remind one another that none of us has to go through this alone. thank you for being here.

Wife just passed after bad reaction to her 2nd Chemo treatment, gemcitabine and cisplatin, paired with the immunotherapy drug durvalumab. Two weeks of treatment then a week off.

She was diagnosed with stage 4 Intrahepatic cholangiocarcinoma in late April/ Early May with it already in her Liver. First scan was on April 7th after a fall and showed something not right with her liver. We were hoping for longer.