r/hodgkins_lymphoma

It's been a year since treatment ended for HL nodular sclerosis. Still cancer free and no signs of it coming back. My oncologist recommends keeping the port for a year, but it's up to me. Some people can't stand it and want it gone after 6 months. And he says he's got an older patient who still has it in after 11 years. I was about to schedule the removal and I stopped because I don't want to jinx it, which is illogical nonsense.

How did you make the decision to have your port removed?

My EOT scan showed 1 lymph node lighting up with 4.1 SUV uptake above liver blood pool.

Asked oncologist for lymph node removal and biopsy. Doc only performed aspiration.

Copying, pasting results below. Oncologist recommended waiting until July PET scan.

I struggle with CPTSD and I'm having a tough time recieving these results. If you'd be willing to share similar experience, I'd be most grateful.

Final Diagnosis

Lymph node, 2R, endobronchial ultrasound-guided fine needle aspiration:

- heterogenous lymphoid population, see microscopic description with comment

- negative for carcinoma

 

Lymph node, 2R, flow cytometric analysis:

- no abnormal B-cell population identified

- no abnormal T-cell population identified

(see flow cytometry summary)

Microscopic Description

Microscopic examination shows a heterogenous lymphoid population. Very rare binucleated cells are present which may be reactive or neoplastic in nature. There is no notable increase in eosinophils. Fine-needle aspiration sampling can not exclude focal involvement by Hodgkin lymphoma in this case. There is insufficient material in the cell block for further studies. If there is significant clinical concern for involvement by classic Hodgkin lymphoma, excisional biopsy is suggested.

Flow Cytometry Summary

COMMENT

Flow cytometric analysis of the tissue specimen shows no abnormal lymphocyte population by immunophenotyping. Clinical correlation is suggested. Flow cytometry may not entirely exclude the presence of a lymphoproliferative disorder.

 

FLOW CYTOMETRIC ANALYSIS

The flow cytometric analysis shows 98% lymphocytes with a viability of 98%. Of the lymphocytes, 9% are B-cells, 86% are T-cells and there are 1% NK cells. The B-cells appear polytypic. T-cells show a CD4:CD8 ratio of 4.3: 1 with no aberrant antigen expression. No significant increase in CD34 positive blasts is seen.

 

Antibodies Tested:

CD2, CD3, CD4, CD5, CD7, CD8, CD10, CD19, CD20, CD22, CD34, CD38, CD45, CD56, sKappa, sLambda

 

MICROSCOPIC

A cytospin preparation shows a heterogeneous population red blood cells, occasional lymphocytes, and monocytes.

CLINICAL HISTORY

The patient has a tissue submitted for flow cytometric analysis.

 

CBC

Order Date: 04/29/26. Actual result date may vary.

CBC W AUTOMATED DIFFERENTIAL

Result

Value

Ref Range

 

WBC

5.24

4.00 - 10.50 x10(9)/L

 

RBC

4.74

4.00 - 5.50 x10(12)/L

 

Hemoglobin

13.3

13.0 - 17.0 gm/dL

 

Hematocrit

42.6

37.0 - 50.0 %

 

MCV

89.9

82.0 - 100.0 fL

 

MCH

28.1

28.0 - 35.0 pg

 

MCHC

31.2

31.0 - 36.5 gm/dL

 

RDW, CV

13.4

11.0 - 14.5 %

 

RDW, SD

44.7

36.0 - 50.0 fL

 

Platelet Count

286

140 - 375 x10(9)/L

 

MPV

9.9

fL

 

Differential result

See Diff Report

 

Order Date: 04/29/26. Actual result date may vary.

WBC DIFF AUTO, 6 PART

Result

Value

Ref Range

 

% Neutrophils

50.7

%

 

% Myeloid Precursors Auto

0.4

%

 

% Lymphocytes

35.7

%

 

% Monocytes

9.0

%

 

% Eosinophils

3.2

%

 

% Basophils

1.0

%

 

# Neutrophils

2.66

1.80 - 8.30 x10(9)/L

 

# Myeloid Precursors Abs Auto

0.02

0.00 - 0.07 x10(9)/L

 

# Lymphocytes

1.87

1.00 - 4.80 x10(9)/L

 

# Monocytes

0.47

0.00 - 0.90 x10(9)/L

 

# Eosinophils

0.17

0.00 - 0.40 x10(9)/L

 

# Basophils

0.05

0.00 - 0.20 x10(9)/L

 

ANC Auto

2.66

1.80 - 8.30 x10(9)/L

Gross Description

A. LYMPH NODE (SPECIFY SITE).

Received in the laboratory are 6 diff-quik stained slides and 6 fixed slides.  Also received with the slides is ~5 mL of clear, colorless, watery, fluid.   All slides and containers are labeled with the patient’s name and HRN. Fixed slides are pap stained. Fluid is processed into cell block.

B. FLOW CYTOMETRY.

Received in a RPMI Tube is a TISSUE sample for flow cytometry. A flow cytometric evaluation is performed.

Hello there.

I need some advice because I cannot sleep at night and have nobody to talk to about this.

My dad got diagnosed with Hodgkins Lymphoma a few months ago. I'm 30, live in a different continent across the world from my parents and they didn't tell me about it and still haven't. I just found out because my dad's photos were linked to my phone so I could see pictures of him at the hospital, him going through chemo and his medical reports.

The handwriting of the doctors in the reports is terrible but I can see that it says Hodgkins Lymphoma Stage 1A favourable.

I call my parents every other day and they still won't tell me anything. My mother tells me that my dad is sick because he's got some cholesterol issues etc etc but she won't tell me the truth. When I ask her when they're visiting me my mom likes joking around that only she'll visit me not my dad as if he's going to die. I'm terrified and I have nobody to talk to about it. I can't sleep and get so many nightmares. I've never lost a family member and I live across the world from everyone.

Should I be worried? Is this a good prognosis? I've googled endlessly but I'm still terrified.

I (19M) noticed enlargement of the right submandibular lymph node about five months ago. After quite some time of trying to express to my GP that I was legitimately concerned and then trying to find time in my schedule, I had an ultrasound done. The radiologist’s impression was as follows: “Bilateral enlarged lymph node in the submandibular region measuring 4.2 x 2.4 x 1.3 cm on the right and 1.7 x 1.2 x 3 cm on the left. Recommend short interval follow up.” Like I said, I noticed the right side several months ago, and as far as I can tell, any change in size has been very subtle if it has occurred at all. No persistent or worsening B symptoms. Last time I had labs done (about two months ago) CMP/CBC were normal and I have a normal chest X-Ray from that visit as well. It is firm but highly displaceable/motile on both sides, non tender on the right. For reference I’m in good health and fitness, no personal/family history of autoimmune/endocrine/lymphatic disorders. I was a long time user of nicotine pouches (very recently stopped) and have persistent acne, which as I understand it these are both chronic inflammatory processes that could be causing lymphadenopathy. What are any likely causes? What should I expect on my next ultrasound? Should I request an ENT exam or biopsy too? Most importantly, could this be lymphoma?