r/nystagmus

MRI and waiting

I’m currently waiting in the children’s hospital as my child is having their MRI. He just went back to the scanner about 10 minutes ago.

Nystagmus started a year or so after eye surgery. It started in the evenings if he was really tired. Sent a video to his care team and they scheduled an MRI to rule out a brain tumor. He keeps gaining weight too fast. His arms and legs have been sore. His eyes are now side to side at random times and during the day.

I’m so scared. Tell me it’s not my worst fears. Tell me the symptoms are coincidental.

Please give me any advice on how to help him

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u/Consistent_Spirit_33 — 6 days ago

Why’s my doctor saying there’s no surgery

My optometrist says there’s no surgery for nystagmus, i wanted his referral to the ophthalmologist but he says there’s not surgery. I actually need to correct it tho.

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u/zakihazara — 10 days ago