I was diagnosed with hypersensitivity pneumonitis many years ago. The lung doctor thought it was caused by e-cigarettes. After I quit vaping, I improved drastically. Am I likely to have permanent damage?
Man what a roller coaster we are on.
My dad finally made it onto the list after 4 years of severe IPF.
He’s been in the hospital two weeks and just made it on the list 48 hours ago and had a donor come through
12 hours later, all the excitement, anxiety and the doctors called 1 hour before his surgery to cancel to due the lungs have severe pneumonia.
My dad accepted it very well and said “thanks for being thorough and I just have to go with the flow, because non of this is in my control”
Trusting the process and really praying the right lungs come through for him to get past all of this.
He deserves to be healthy again. 🙏🙏
Hello all,
I am figuring out how to get a lung transplant eval with my dad’s insurance, he has LA Care plus (we reside in LA), but before I move forward.. I would like to get any pre-op / post-op details from anyone who has been through a double lung transplant.
My dad just turned 70 and he was diagnosed in 2023, he had been fine until about a year ago.. he is now on oxygen 24/7 at 2L. He started getting really tired and started losing weight a few months ago and was hospitalized in February resulting him being placed on oxygen 24/7 - I had no idea that once his oxygen would start dropping he would lose weight because he would start burning more calories as his body started working harder to breathe than normal.
Can anyone please guide or provide what post-op looks like after a lung transplant.. I love love my dad with all my heart, and I don’t want him to suffer more than he has too. I don’t want to go in this blind and hurt him because I didn’t know or asked.
Also, if anyone out there decided not to go through with the lung transplant eval - can you please share how the disease progresses, can you share you experience and how the stages develop or look like especially at the end stages.
Asking these difficult things with empathy, compassion and all my respect. Thank you. ❤️
Was cleaning out my dad's place and found a full 270 CT bottle of esbriet unopened...was. curious how much everyone is paying. I looked up the full retail and it said 10k...that cant be right
Tell me the positive about living with 1 new lung?
He has 20% lung capacity left and they only approved him for one lung transplant because they said his heart isn’t strong enough for the double and I’m just curious what’s everyone’s experienced about
We lost my dad (65) after two years of his battle with IPF. He refused a lot of medical treatment and doctors visits over those years (though he was on oxygen, ofev, prednisone) and my heart breaks that perhaps we could have had many more good days together with more medical intervention. This disease is a horrible thief and I am so deeply devastated that it took his independence, his happiness, and now him. He was such a sincerely good and loving person and father and he deserved so much better.
I am so sorry to everyone affected by this disease, my whole heart goes out to you and your loved ones. No one deserves this. May you have so many good and happy days left together.