r/valleyfever

Sorry if this is a long story but I’m at a loss with what to do. I’m a 30 yo F and in January I started experiencing chest pain, fever, shortness of breath. I went to urgent care and I was diagnosed with pneumonia and was tested for VF. I was put on antibiotics and steroids and sent on my way. I followed up with my PCP on the VF results and the first test was positive and the second test was negative, my PCP said the second test is more reliable so they went with me NOT having VF. In February a few days after I finished the medications I broke out in a rash, developed fever, chills, shortness of breath, joint pain, back pain, chest pain, and pain on the left side of my neck. I went to the urgent care who sent me to the ER. ER did chest XR and inflammatory markers. They diagnosed me with erythema nodosum and said the chest pain was from a lung nodule, more steroids were prescribed and was sent on my way. I followed up with my PCP because I was not improving with the steroids. They stated that “this is just what it’s like to be sick” and instructed me to complete the steroid course. Unsurprisingly all of my symptoms came back after steroids were done so I went back to my PCP in beginning of March. They wanted to put me on more steroids but I requested more labs and testing, specifically a repeat VF test. VF came back positive with titer of 1:8. A MA called me and said I was being referred to a pulmonologist. I was thinking finally I can get treatment! But when I saw the pulmonologist they advised no to the fluconazole because I’m “young and healthy” and should be able to fight it off on my own. I asked about the chest pain which is right in the middle of my chest and they said “that’s not where the lung nodule is so you should not be having pain there” and that was the end of that conversation. I had my follow up last week and the pulmonologist said because the VF labs are “going down” (titer wasn’t done) and the lung nodule is getting smaller I still do not need the fluconazole. I told them I still have chest pain that only seems to be worsening and they said because labs are improving the chest pain is unrelated to the VF and signed me up for an asthma test. I really do not think my chest pain is asthma related, so I transferred care to new PCP who is sending me to a cardiologist. Maybe it’s all the medical gaslighting I’ve experienced thus far, but I’m so worried this cardio referral is going to be another dead end. Has anyone experienced this? My chest pain aching all the time in the middle of the chest and is sharp and stabbing if my heart rate is up. Symptoms started when I have the initial pneumonia. I’m just not sure I’ve been receiving proper care for any of this and that my life is being toyed with because I’m “young and healthy”.