r/wolffparkinsonwhite

I’m 20 but I was diagnosed with WPW when I was 14 after it was accidentally caught on an ECG. I had fainted or almost fainted a handful of times before then, spread several years apart each time, but never had it checked out because I otherwise felt fine. When I was diagnosed with WPW I told them I didn’t have symptoms, because I didn’t get dizzy ‘for no reason’ and I’d chalked the fainting up to dehydration, so I somehow didn’t make the connection of them being WPW symptoms even though the cardiologist specifically asked if I has those symptoms.

Basically, they said it would be best not to get the ablation since I’m ‘asymptomatic’ and the surgery would be riskier than the arrythmia itself, especially as a teenager, so I just forgot about it for a few years. I researched and thought I understood WPW but I’m now realising I was quite wrong.

I’ve been having occasional dizzy spells, lightheadedness and episodes of tachycardia (just mild), but in the past year or so I’ve had weird symptoms popping up like random pins and needles in my hands, feet, with pins and needles as well as a kind of heavy or swollen feeling on the right side of my face and a feeling like my right eye is swollen and blurry, and difficult speaking. I thought it was just sleep deprivation or a pinched nerve but now I’m paranoid that I’ve been having TIA’s due to A-fib or something.

The only reason I’ve suddenly become so paranoid is that I had chest pain come on over the past few days, it’s on the left side of my chest and shoulder/arm, sometimes neck and jaw (that being said I also have a painful wisdom tooth coming in on that side) and comes and goes, kind of feels like a small weight or knot deep in my chest but not severe and doesn’t last long. Because of this I’ve been checking Mayo Clinic and Web MD like crazy and now I don’t know if I’m being a hyperchondriac and imagining it, or if I should go to the ER or Urgent Care. I’ve booked to see my GP in 2 weeks as it’s the earliest available timeslot, but because of my amateur research I’m terrified that I’m going to get sudden cardiac death since it’s more common when you’re symptomatic, plus the chest pain is freaking me out.

I know it’s very unlikely to go into V-fib from WPW, but it does happen and from what I’ve heard you basically just drop dead. I’m wondering if anyone else has the same kind of chest pain just due to the arythmia, which doesn’t necessarily need urgent care? sorry for the massive rant 😭

Getting my ablation on Thursday I'm female 23, and I was diagnosed a year and a half ago.

I haven't been nervous or scared more happy to get it over with but now I'm freaking out any advice i only got the call a week ago so I think that's why I'm thinking all over the place.

Hi, 18 F who is 5 weeks post ablation. 3 out of four extra pathways were successfully ablated. I will definitely say I am feeling a lot better but for some reason every few days or so I am experiencing chest pains which last a couple minutes. I never experienced chest pains really like this before but it’s quite uncomfortable. And also about 3 days ago I had got woken up to my heart making a rumbling feeling. Is this normal post op? Or should I say about these symptoms in my follow up appointment. I am also back on my beta blocker for my pots

A few months ago I had an ecg done and was told I needed to see a cardiologist to confirm what they saw as wpw. I was able to get insurance since Im in the US and then went to the cardiologis last week and it was confirmed I have wpw. Today I had my echo and my holter monitor attached. Tomorrow I have my ct calcium scan. What next steps can I expect after that? How quickly were you able to return to work after the ablation?

I’m 26(f) in the uk, I had a bout of bad palpitations November last year, triggered by a nasal decongestant, by luck I had a holter monitor for a pots referral, which caught the palpitations.

My cardiologist has referred me to a specialist over suspected WPW, and I have my appointment Tuesday.

I’ve obviously had it my whole life, but was only triggered when I had the nasal spray, and it lasted two weeks. The symptoms were obvious, I couldn’t ignore them, and severely different from my pots symptoms.

Since then, they’ve never came back, I will admit the idea of an ablation terrifies me, but can I be ‘stable’ in this syndrome? I’m on 20mg propranolol also, which handles my pots so my heart rate is very stable now in that area as well.

I’m iffy about having it if it’s offered as the symptoms haven’t appeared in 6 months, but I don’t know if ‘managing’ WPW is possible without an ablation.

All opinions welcome, thank you :)

So basically im a teenager on the older side but 4 ish years ago I started having dizzy spells when standing and my heart would randomly start beating super fast no matter what I was doing. After 6 ish months it turned into random dizzy spells, heart palpitations, rapid heart rate when sittings, fainting (not often just sometimes), vision going dark when standing, shortness of breath, nausea, chest tightness/pain, and what feels like lung pain. The have all gotten worse overtime it’s been really hard. I have an SVT and WPW diagnosis but not much info on how to help it, I was told for two of those years it was just anxiety, I’ve worn 2 heart separate monitors. And my heart rate ranges from 40s - 180s every day I do take atenolol and it gets it down to 140s most the time but my meds don’t work like they used to so I am going back next week. I’ve heard stories of people only having episodes like once a day or week but mine are frequently to the point i cant even count them and last between 1-10 minutes each. ( I would like to note i love playing sports I used to play softball, basketball, and volleyball but now cant) i also know one trigger is heat it gets a lot worse in the heat. Any advice or anything helps!

Has anyone else with WPW noticed that their symptoms get way worse when they’re in a calorie deficit or actively trying to lose weight?

For years I was only diagnosed with SVT, and honestly I felt like a lot of doctors just brushed it off as “anxiety” or generic tachycardia without really looking deeper. I’d have episodes where my heart would suddenly race, feel pounding/skipping, get dizzy, shaky, weak, etc. Sometimes vagal maneuvers worked, sometimes they didn’t.

Recently I ended up in the ER again and one doctor actually took the time to carefully look at my ECG instead of just treating the episode and moving on. They noticed the delta wave pattern and finally diagnosed me with Wolff-Parkinson-White syndrome.

One thing I’ve noticed is that whenever I’m in a calorie deficit or losing weight, my heart symptoms seem WAY more activated. It almost feels like my body gets more sensitive to triggers when I’m not eating enough or my blood sugar is lower. I’ll get more palpitations, adrenaline feelings, weird chest sensations, and episodes seem easier to trigger.

I’m curious if anyone else with WPW experiences this? Or if there’s any explanation for why calorie deficits/stress on the body seem to aggravate it?

I smoke weed fairly often but after experiencing my firstfirst major symptoms of wpw (heart rate at around 200bpm and passing out twice) I noticed that when I smoke my heart rate jumps through the roof. Never happened before experiencing symptoms but now it happens whenever I smoke (4 times) I obviously stopped smoking because of it but was curious if anyone else has experienced this as well

Was diagnosed with WPW about two months ago - have seen and spoken to a cardiologist who said he’ll get me scheduled in for an ablation but can’t give an exact time frame due to public system wait times… What has been your experience with the public health system in Aus? How long did it take to get a date for the procedure and how much out of pocket am I expecting to pay?

I had an ablation many years ago when I was a pre-teen and have had no recurrences luckily.

I have however gotten another diagnosis of autism in young adulthood, and have had other random physical abnormalities and am still relatively young. I was curious if anyone knows of other comorbidities with WPW or if there's a pattern with autism and WPW? I know people are making links with ASD to POTS, EDS, dysautonomia, GI diseases, etc. but am curious if there's a similar theme with those that have had WPW? A lot of this stuff is anecdotal but I think there's still a major gap with medicine and some of those comorbidities.

Hey guys, to start I do not have a pacemaker. This is more a question for those who had WPW and ended up with a pacemaker. How do you find exercising is for you? Are you able to do high exertion things or are there limitations? Is it better or worse than before you got treated for WPW? Thank you for taking the time to read :)

I was curious if anyone else dealt with a constant almost fluttering feeling in the heart and stomach for weeks on end. Also if anyone has or understands will an ablation help solve this problem my doctor believes it’s the route I should go but I’m nervous.