Hey you!

I just wanna know what symptoms y’all have.

I wondered for YEARS why I get tachycardia after eating large meals, I thought I’m just crazy because NO cardiologist could ever explain it to me. Then I read in some of y’all’s comments on another post, that you have the same??

So let me know how you get through the day. What is causing symptoms? How is your body feeling/reacting?

For me it’s crouching down, especially after a workout/run, eating large meals, being overly excited, coffee and stress

five years ago, I discovered that I had WPW syndrome because I was always having arrhythmia and horrible palpitations. I went to get EKG and it showed up as WPW. after talking with my cardiologist We decided to do an ablation. after the ablation he claimed it was “successful “and apparently it wasn’t WPW but an extra nerve instead of an extra pathway so I just went on about my life, he never told me what it was or any more information about it. He just said it’s not Wpw it’s a nerve but he also mentioned that it was always gonna show up on the EKG as WPW even if they removed it. i never questioned it. A couple days back. I had a horrible episode when I was laying in bed and felt like someone had just punched me in the chest like a big thump, which was unfollowed by what was probably 200 bpm. After I did some breathing and tried to call myself down it went down to 110. I had one today as well, which is why I’m sharing this. but earlier in the morning, I went to get a second opinion and saw another cardiologist and he did an EKG and an echo. He got the EKG and he said that it’s showing up as WPW still like the other cardiologist had told me, but he said that it’s a red flag that they “removed” said nerve and it’s still coming up as WPW. He said that they might’ve not fully completed the ablation. I have an appointment with the cardiologist that performed it in a month but if anyone has any ideas, what could be happening now I would greatly appreciate it.

Hi all, I had my ablation recently and i'm trying to figure out whether I should go on a planned hiking trip 3 weeks after a catheter ablation for WPW + AVNRT (multiple pathways).

The plan is a 5-day mountain trip, with hikes of ~2–6 hours and ~1,000 m elevation gain.

My EP basically said: “take it easy for ~2 weeks, then gradually increase activity” - but I’m not sure what that actually means in real life..

My question:

At week 3 post-ablation, is something like a 5-hour hike (if I feel fine) realistic, or still too much? The nurses are not really clear, they are like; build it up gradually. But I need to know how much heartrate is oke, how long etc..

Context:

Before all this I was fairly active (running + strength training), and I’d like to get back to that fairly quickly after recovery. And to be honest, stronger and fitter than before (as I've been neglecting my fitness abit due to travelling)

I’m mainly trying to understand:

• how fast people actually returned to normal activity
• when hiking / cardio felt comfortable again
• whether week 3 is still “easy walking only” territory or already “back to normal-ish”
• how did you decided that strenght training / cardio was ok?

I’m a bit torn because I really want to go on this trip, but I also don’t want to push recovery too early.

What was your experience around weeks 2–4?

Thanks!

Hey y’all!

How are y’all doing with your wpw?

I’m a very big fan of outdoor activities, especially hiking in lonely areas. This has been no problem at all for me for the last 10 years because I rarely had any tachycardia episodes.

I went out hiking a few weeks ago with a friend to climb a summit, when it happened. I got a very bad wpw episode and had to hike 7 hours back from the mountain. I have been feeling terrible the whole day and a few days after. Since then I’ve gotten some more episodes the days after the hike (guess it’s the thin air, the sweating and the physical stress from hiking) because we did some more lighter tours afterwards.

How are y’all managing things like this? Don’t do hiking anymore?
This would be so so sad, because it’s what I love to do, but I’m scared now.

Hi all,

I just wanted to see if anyone else here experiences what I have been.

Since my wpw has presented I experience:
- random anxiety symptoms through the day (sinking feeling, tight jaw, numb and clammy hands & feet etc.)
-normal paced but thumping heartbeat that can last hours
-unable to sleep due to body rocking from thumping heartbeat
-anxiety while trying to sleep if heart is having an episode
-unable to eat meals most of the time since they can trigger episodes
-triggered by sweet things

My panic attack symptoms are so bad that I’ve had to be put on two kinds of medication (approved by cardiologist) to help but my heart seems to be making everything so much worse.

Is there anyone else who has these?

I had my pre-op assessment on Tuesday and whilst I was there I asked the (I think she was a ‘specialised nurse’?) lady a lot of questions, one of which being ‘when can I do intense exercise again?’ And I’m not sure if she understood what I meant because she said I can go back to intense workouts after a week but to be wary of getting out of breath and the wound in my groin area - I probably should’ve specified I meant like 30-60 mins stairmaster, 13 incline treadmill, heavy weightlifting etc (tbf I’m getting back into the gym after being out for a LOOONG time so I’m very weak so it won’t be that heavy but I want to try to do heavy asap), so surely 1 week is far too soon? How long would you recommend from your experience!
(F22)
Also omg ablation on the 19th August for me! scared and excited! So happy it’s not long before my birthday :))
Alsooo if there’s any gals or guys around my age who have wpw wanna add me on insta, I’d love to connect w other people who’ve gone thru the same things as me :D

so it seems to be somethin that runs in my family, my maternal grandma and cousin both have it, both being diagnosed a bit later in life, and ive told my grandma a lot about my symptoms (flutters randomly growing up, fainting, random episodes of rapid heart rate out of nowhere, getting out of breath randomly and that impending doom, all that fun stuff and more i cant think of off the top of my head) and she told me she has had many of the same issues. she finally got me to bug my dr about it, and after maybe four or five times of bugging her she finally got me in touch with a cardiologist. well when i go in to speak with him, all he has to tell me is that what im describing doesnt seem to be as severe as what wpw would be, and that wpw is very rare and he doubts i have it. nonetheless, gave me a heart monitor for a week, and did an ekg. wont get the results till friday, but i guess im just nervous that maybe its not enough information and ill be told once again that nothings wrong with me when there clearly is something wrong. wish they wouldve given me the monitor during the time i was having the episodes more often. i was given propranonol for anxiety, but i would still get the rapid heart rate episodes even when there was no trigger for the anxiety. i was just told they were random panic attacks, but i really dont believe that, cause ive had panic attacks before, and those involved tunnel vision, rapid breath, crying, hyperventlating, and would have a specific trigger. this was just rapid heart rate (somewhere around 160-190), lasted like 10-20mins, and i would just feel out of breath rather than hyperventlating. idk im just hoping they can figure out whats wrong with me

Anyone on flecanide and zoloft? My ep okayed it. But im paranoid as crap. I was on zoloft years ago before my ablation for wpw syndrome developed pvcs after , and now on flecanide to suppress them. Recently my mom passed suddenly and unexpectedly and my anxiety ocd and panic is really bad so they added zoloft.

Hi, I'm 18 years old and just got diagnosed with wpw. I have experienced fainting, dizziness, lightheadedness, palpitations, shortness of breath and trouble breathing. I'm really scared about it though my parents say, it's nothing to worry about. According to the doctor the treatment needed for wpw aren't available in the part of india that I'm from. I'm very clueless and worried.

Somebody tell me if it's actually something i should be worried about or it's nothing just like my parents said.

i’m 17 and i was diagnosed half a year ago, my ablation is planned inna month. When i first got diagnosed i got so anxious that i would cry myself to sleep pretty much everyday. I hated myself so much for having wpw because i love sports. I was under a lot of academical stress and the diagnosis only added to that.. My parents and friends were supportive and it was only making me more mad. I was so terrified because my heart is “broken” and i didn’t even do anything to break it.
It might sound pathetic but i was under so much constant stress that my personality started changing.. i didn’t notice that but my gf did and that only made me more stressed. I was trying so hard to be “me” again because i was terrified of her leaving me.
Sorry for my poor english but its not my first language.

I am diagnosed with POTS and hypermobility. I had two episodes within two weeks that did not fit my typical pots pattern. Both times I was sat up in bed and eating. I felt a big wave of impending doom rush over my body and BOOM my heart was pounding out my chest. This didn’t calm down with me laying completely flat which is not typical for my POTS. The second time was resolved by ice packs on my face. I have really bad health anxiety… and since these episodes I haven’t been eating out of fear it will happen again. I’ve lost 8kg, I’m extremely depressed and anxious and I was wondering if someone could help or explain WPW? **My cardiologist notes are below** I’ve had a few ecg tests that show short pr interval? Two echocardiograms that came back normal and multiple 24 heart monitors that only show sinus tachycardia. I don’t have regular contact with my cardiologist so I’m afraid and scared left in the dark. What if I have this? I’m scared I also fly to Japan next year and worrying about if I have an episode mid flight like wtf do I do? I’m even scared to be alone … my partner is with me most of the times he can be and if it’s not my partner I’m sat following my mother around for safety lol…. My anxiety is 1000/10 and I think I’m spiralling out of control.

ECG on 27/05/2026 showed sinus rhythm, short PR interval, and mild slurring of the QRS upstroke, suggestive of a possible delta wave (?WW pattern).

The recent episodes of non-postural tachycardia may represent a different tachyarrhythmia and warrant further investigation.