u/11sgw11

Apologies for the long post. For context, I have been dealing with etd symptoms for 3 years now, but the ENT I’m seeing hasn’t gone through with anything that might help because my tests come back normal (pressure test, hearing test, ct scan, etc). So no ear tubes, no balloon, and I rarely get to see him as well. So I basically have done whatever I can on my own before I started seeing him and ever since. I’ve gone through all the usual: sinus rinses, nasal sprays, exercises, I don’t need to list it all as you probably have done it too. There was a short month of time when I really thought it had finally gone away, back in March, but it came back even worse in April, and now I think I did something that really messed me up. The last few days it’s like I permanently “broke” something. It’s like when I try to fix the symptoms, I just push them farther back into my head/inner ear where the actual problem is, and now I feel like the blockage or function has been completely cut off. I’m having trouble swallowing food; sometimes I feel it coming back up, and I believe I have something called empty nose syndrome, I’ve seen people on these forums call it that. So it feels like any possibility of popping or opening the tubes back up is out of my hands because of the placement of whatever issue. I’m sorry if this sounds wack but I feel like someone here would be the only person to really understand, because if I even try to explain it to someone in my real life they have no idea what I’m saying. Basically just looking for some advice if anyone can relate to what I am saying, or if anyone has any ideas for help. Thank you

Apologies for the long post. For context, I have been dealing with etd symptoms for 3 years now, but the ENT I’m seeing hasn’t gone through with anything that might help because my tests come back normal (pressure test, hearing test, ct scan, etc). So no ear tubes, no balloon, and I rarely get to see him as well. So I basically have done whatever I can on my own before I started seeing him and ever since. I’ve gone through all the usual: sinus rinses, nasal sprays, exercises, I don’t need to list it all as you probably have done it too. There was a short month of time when I really thought it had finally gone away, back in March, but it came back even worse in April, and now I think I did something that really messed me up. The last few days it’s like I permanently “broke” something. It’s like when I try to fix the symptoms, I just push them farther back into my head/inner ear where the actual problem is, and now I feel like the blockage or function has been completely cut off. I’m having trouble swallowing food; sometimes I feel it coming back up, and I believe I have something called empty nose syndrome, I’ve seen people on these forums call it that. So it feels like any possibility of popping or opening the tubes back up is out of my hands because of the placement of whatever issue. I’m sorry if this sounds wack but I feel like someone here would be the only person to really understand, because if I even try to explain it to someone in my real life they have no idea what I’m saying. Basically just looking for some advice if anyone can relate to what I am saying, or if anyone has any ideas for help. Thank you