u/22cadence

▲ 2 r/MCAS

Were these ‘signs’ as growing up?

I was always sick as a kid. I remember from the age of 7 getting diagnosed with asthma and having
-severe allergies with constant sinus infections.

I was on a nebulizer for more than half of my childhood. I was overweight from all of the steroids I had to take from being so sick so often.
-ended up having to get a tonsillectomy when I was like 9-10 years old.

Fast forward to highschool, my freshman year is when I started getting really bad acne. It was extremely inflamed, red, and painful. I got it all over my chest, face, and back. I didn’t respond to antibiotics. It would go away/settle down for a month but then come back with full force.

My sophomore year of highschool, I ended up randomly developing what seemed like vertigo where I lost my balance and had to relearn how to walk again. They ran so many tests and I missed so much school. It wasn’t vertigo and they never found out what was wrong. I just got better eventually.

My junior year of highschool, I had an appendectomy because of appendicitis. Very random as well.

Then magically, from the ages of 18-22, I had no health issues. No more chronic sinus infections, allergies, bad asthma. No random surgeries or illnesses. It was amazing.

Now I’m 24, but since last year I feel like I’ve began regressing and although I’m in the early stages of figuring out what’s going on with me, I have a feeling it could be MCAS.

Just trying to see if others share a similar experience?

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u/22cadence — 8 days ago
▲ 2 r/POTS

Hi everyone,

I’ve recently been diagnosed with dysautonomia, and a neurologist is confident I also have POTS based on my symptoms. I’m still in the early stages of understanding all of this, but it’s been really validating to finally have some answers.

I’m mainly posting to see if anyone relates to my experience with adderall (or maybe other adhd meds)

About 2 years ago, I was diagnosed with ADHD and started Adderall. A few months later, I began developing early POTS-like symptoms. Looking back now, I’m wondering if Adderall may have unmasked or worsened my dysautonomia (which was dormant) especially since this all happened around a really stressful period where I was also grieving my brother.

What I experience on Adderall (especially at peak) is:

-irritability / feeling on edge

-emotional blunting or feeling “flat” (like I can’t even form a smile)

-no desire to talk or be around people

-low patience, becoming snappy without meaning to

-feeling withdrawn, dry, and almost shutdown socially

-no energy

-easily overstimulated

It helps my focus, but with POTS in the mix, it almost feels like my body is stuck in a constant stress response.

Has anyone with POTS/dysautonomia had a similar reaction to Adderall or other stimulants?

And what meds did you find worked better for you? Also I suffer from low blood pressure due to my POTs

Thanks in advance for taking the time to read this/and or reply!

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u/22cadence — 24 days ago