u/82Yuke

Admission tomorrow.

Welp, waiting time is over. Going in for AVR (M43 BAV) - probably via Mini-Sternotomy. Things are different here in Germany it seems. There was no big meeting beforehand. I briefly talked to a surgeon who wont even operate on me but works at the same hospital because I was anxious and kept contacting them via Phone/E-Mail until they gave me an appointment 🫠. They will look at my CT/MRI/Echo results tomorrow and then talk with me about the final plan.

Still cant decide on valve choice. Hope they will force me going into one direction. I dont even care at this point anymore and just want it to be over and feel better.

Apparently they do a modern approach here now and let you "carb load" and drink before the surgery and "mobilize" you a few hours after. So lets see how this will work out for me. 😶‍🌫️

My biggest headache now is packing my stuff. I assume I wont be in the mood for using my laptop. So ill probably just stick to my cellphone + holder + wireless in-ears. Gonna load up on my favorite Vasa snack assuming the hospital food will be bad.

Didn't prepare anything at home. My mom will be with me for the first days though potentially helping me out if something comes up.

So, yeah, hopefully i'll be still here in a few days, considering that I already booked my vacation for july. 🤣

::EDIT::

I am sitting in my hospital bed now. I met 4 surgeons in total and the anesthesiologist. We are going for the Inspiris Resilia Bio-Valve. Hopefully the research data in the next years will still be going strong with no signs of degradation. Tomorrow morning they will put me under. Cya on the other side!

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u/82Yuke — 5 days ago

Was darf man unkenntlich machen?

Ich möchte in meinen Kontoauszügen unkenntlich machen, in welchem Lidl ich einkaufen gehe (nur die Adresse/Ort), da man dadurch Rückschlüsse auf den Wohnort meiner Freundin ziehen kann (Wir leben noch getrennt, aber wenn ich sie besuche, kann es schon mal sein, dass ich einkaufen fahre und auch bezahle).

Und ja, tut mir leid, falls das eine dämliche Frage ist, aber ich bin einfach durch die Interaktion mit dem JC in den letzten Monaten komplett geschädigt.

LG

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u/82Yuke — 12 days ago

I am 43, diagnosed with BAV, and they will do the replacement in two weeks.

I am thinking about playing it "risky" and going the "modern technology/science" route...which means bovine pericardial tissue that was heavily modified and does not need to be stored in aldehyde solution (I am quoting Edwards Technology here) which is the main culprit for higher calcification rates.

The risky part is, that I am hoping that TAVI (valve in valve replacement) will be finally approved for younger people in the near future...so I can get 20+20 years out of it with no big impact in my daily life and sleep.

What I am really unsure about is that Edwards is overselling/overestimating their product. Real data only exists for about 5 years (well, it is a new technology) and the simulation data that showed 50 years of mechanical resilience was in a sterile environment without biological agents (I assume this is the main problem for valves).

So, yeah, long story short...what is your take on all of this? Did anyone go this route and risked it with a 'RESILIA' valve?

Thanks.

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u/82Yuke — 17 days ago