r/PsoriaticArthritis

In Japan I came across a cultural phenomenon called "Radio Taiso". Japanese people stretch for 3.5 minutes before work/school everymorning. Together. As a group. From the time they are school children to the time they are old folks.

3.5 minutes of non judgemental non competitive, at your own pace/ability group stretching. It's not particularly difficult or meant to be. The opposite. You're basically just shaking it off so you can start your day.

I decided I could/should do this, so from now on for 3.5 minutes every morning while I'm the most stiff I'm gonna do radio taiso stretches over youtube watching a bunch of Japanese dudes so they can show me the ropes. ​

Figured I'd share for anyone looking for more tools in the toolbox.

Hey everyone! I have a couple of questions for people living with psoriatic arthritis, especially those with axial PsA.

How long were you on adalimumab (Humira) before developing anti-drug antibodies, if you developed them at all?
Did it stop working for you, and were you able to switch to another biologic successfully?

How long did you have symptoms before you were finally diagnosed with PsA? I’m particularly interested in hearing from people with axial PsA. How long did you suffer before getting your diagnosis?

I have axial PsA and am considering starting adalimumab. Honestly, I’m feeling quite anxious because I’ve read so many Reddit comments about people developing antibodies or losing their response to Humira. It’s made me worry that it might only work for a year or so before becoming ineffective.

I’d really appreciate hearing about your personal experiences, including people who have been on Humira for several years and are still doing well.
I know everyone’s experience is different, but hearing from people who have been taking it long-term would really help me put things into perspective.
Thank you! ❤️

I pretty much only see my rheumatologist once per year. Other times I see one of his PAs.

I’m still trying to find a med that works for me and at my last visit with the PA, she did something that I’m still angry about. During the appointment she sat at her laptop asking me questions. She then asked to check my hands and joints.

She started squeezing each joint and asking me if it hurt, etc. The appointment was wrapping up at this point but she still was feeling my hands and joints. Then without warning, she squeezed the joint at the base of my thumb at the wrist. Hard.

That hurt pretty badly when she did it and when I pulled my hand away she still held on and squeezed! Then she says that isn’t PsA. I cut her off and said I know. I was pissed because 1) it hurt a lot (it’s obvious I have osteoarthritis in that spot since its bigger), and 2) I didn’t ask her anything about it nor have I since I know it’s not PsA. She had no reason whatsoever causing me that level of pain just to tell me it’s not PsA.

I have to see her again next month and I absolutely am nervous she will surprise me again with something stupid and very painful like she did. I can’t find a new doctor, they are it where I am. The actual rheumatologist is fine but I swear if she pulls another stunt like that again I will kick her or worse and tell her it was just reflex. &@$)?!#!!!

How would handle this and future visits?

Hi! I started my first ever PsA treatment (for severe yearlong flare) and first biologic about 2 weeks ago with Taltz.

It was going great as far as experiencing zero side effects until day 12 and then I suddenly developed what turned out to be cellulitis -- rapidly formed hot, fire red rash over injection sights on stomach, 102' fever with sweats and chills, and severe fatigue. It was one of the scariest illnesses I've ever had. My doc said to treat it as a virus and that they'd never seen this reaction from Taltz, but I ignored and went to ER where I was immediately treated for cellulitis with IV antibiotics. It improved massively as soon as the antibiotics hit and I'm still finishing up a follow-on course of those pills.

I've used injector pens for GLP for years with no issue, I know how to sterilize the area and use needles safely, etc. I do see that Taltz lists cellulitis as a side effect with 0.1-1% incidence but can't find anyone mentioning it online.

I don't want to take another injection of Taltz ever, but I know I'll need another medicine option and I'm so anxious about this happening again. Has anyone had severe reaction to a biologic and been fine with another class? Anyone gotten cellulitis specifically and been okay with something different?

I have went through soooo many pillows and the mattress if firm and still im hurting. Anything pillow or mattress related that makes your aches and pains subside?

Could some folks share some natural remedies, Or Supplements that they have used to treat their PsA pain ?

I'm 39f, had arthritis since I was 21, psoriasis probably my whole life. I've been in treatment for about 10 years now, and it wears on me so much.

I recently thought back on how I've felt this year, and realized that my medication isn't working anymore. I've felt awful when I do anything, and I've been asking for steroids a lot, other than the few months I was on bed rest this summer. And the disease not being managed has been destroying my mental health.

So I sent a message to my doctor, explaining all my evidence. First, it takes 4 days for a response. Then, I got a message back from a nurse, implying that I'd just been complaining about a flare, and wanting to send me more steroids. I replied that no, that's not what's happening, I'm becoming seriously depressed because all I feel is stiffness and pain. The message was pretty desperate, but I got a reply from my doctor, that she'd like to see me to discuss medication changes.

I know, I got the result I wanted, but why do I feel like I have to beg for help? The last time I asked for steroids for a flare, it took a week to get any response, after I'd sent 3 messages. Even when the office had replied, I felt so frustrated when they brought up how I'd felt fine at my recent appointment, which was shortly after I'd been on bed rest. There was no interest in my situation change, it seemed.

I know a lot of people will just say I should change doctors, but I don't have many options around me. And, this isn't the first office I've struggled to be heard by. Just wanted to vent to people who might understand.

I've had chronic pain for twenty years, starting in my late teens/early 20s (depending on what I count as pain. Some of it seemed mild in my teens, but I now see its very presence was indicative of something.). I have had a few diagnoses over the years, but it's largely been one of fibromyalgia. I've been working on "neuroplastic" pain on the recommendation of my doc.

When my doc gave me Meloxicam, the pain became noticeably much, much better. My doctor looked over my charts again and saw that a couple of years ago I had psoriasis after having strep throat. The rash was all over my torso and legs. He thinks that due to the Meloxicam helping me and the history of psoriasis, I have psoriatic arthritis.

What I'd love to know from people who've been dealing with this diagnosis for longer and are much more knowledgable is... Is just one instance of psoriasis enough for a diagnosis (as far as I remember - possible I had these rashes long ago and don't remember)? And also, if the debilitating full body pain has been there for about fifteen years before the outbreak of psoriasis on my skin two years ago, isn't that out of order in some sense?

Thanks in advance for any advice and knowledge, and apologies for my ignorance. I am just starting to learn about all of this.

Does anyone else also have Fibromyalgia? If so, what are your symptoms and what helps you most? What do your worst days look like?

I’m just starting to learn more about this. I was diagnosed with this and SICCA (although a couple rheumatologists suggested I have seronegative Sjogren’s).

I’ve had enthesitis before but they were manageable.

I recently had some MRIs done, and have tendinosis in several areas. Has anyone been able to resolve this issue? Everything I have tried to throw at it so far is not helping 😢 And it’s more painful than before.

Rheumatologist explained that biologics and anti-inflammatories don’t work for tendinosis because it’s no longer inflammation like enthesitis/tendinitis. He says treatment is PT and PRP 😭 But, I already done those

My primary non-work computer is a Samsung tablet - the s9 Ultra, which has a brilliant 14.6" screen. However, the combination of stiffness, pain, and deformity in my fingers caused by PsA has left me unable to hold it as a tablet, it is essentially a laptop without a permanent keyboard.

Do you use a tablet; if so, what tablet are you able to hold and use for any period of time,​