I hate the word "mild" and its meaning
Hellooo
I was reading a post where people were discussing the mildest form of CP
And I realized that maybe I don't actually have the mildest form, I have no idea.
I feel like I'm going nuts. My whole life, doctors and my family have told me I should be grateful. They say that since I have such a mild case of CP, I shouldn't have trouble using stairs. But the truth is, I struggle a lot, I can't go up or down without holding onto the handrail, and if there isn't one, I either can't use the stairs at all or I have to sit on the floor and scoot down on my bottom.
Whenever I tell doctors this, they say it's unusual, that I shouldn't have that problem and they start comparing my case to children with cerebral palsy in countries with limited access to medical care.
On the other hand, my family says I'm just looking for pity and need to toughen up. Also, they complain when I ask for help getting out of the shower.
All of this shit has got me thinking: how do doctors decide who has mild cerebral palsy? I don't want to sound ungrateful or anything like that, but I don't think I like the term "mild", it feels like a label that's hard to fit into and creates the expectation that I have just as good as an able body person in doing tihngs.
Which means i cannot say i got a disability cause everybody stares at me and say im not on a wheelchair so i musnt say that.