Active flare in perineum (F49)
Hi fellow sufferers of this brutal condition.
I'm stage 2 been on Adalimumab for comorbid psoriatic arthritis, so waa prescribed by rheumatology. UK NHS.
Had it since 18, diagnosed when I was 38. 10 years on biologics, had breakthrough flares but now seems to be not working at all.
I'm 9 days into an abscess in my perineum. I have an existing tract/drainage point there from a few over the years. My GP gave me Flucloxicillin 8 days ago. I had to go in with a bodkin needle (sterile) to get some relief. But a pocket refilled and seems to be in the bartholens area on labia.
Contacted GP today who told me to go to A&E (ED for some counties).
Been doing dead sea salt hip baths. Hibiscrub wash (think American's call in Hibiclens). I also have Dilactin T lotion. (Clindomicin?)
I couldn't face going to A&E with a waiting time of around 8-9 hrs on hard chairs and full of sick people. Can't face explaining my disease to healthcare people who have so little awareness of the condition. I know they'll just give me different antibiotics & send me home.
Been on a YouTube surgical cyst drainage watch marathon & am seriously considering adding to my self care kit some sterile surgical blades and just getting the magnifying mirror. I can't take any more of the waiting, or going to A&E to be fobbed off or made to feel like I'm wasting their time.
Thanks for reading. I wish you all well and will welcome any suggestions of self management in this area.
I know I've been very fortunate to have a treatment for a different condition that has helped this one for a decade, but it's clearly not now. I'm sick of feeling embarrassed and of medical professionals treating me like shit.