u/Additional_Bid_7688

Hi all!
I’m 22F and UK based - I recently had to go gluten free and dairy free due to health conditions and been debating for ages about going vegetarian and decided now’s the time I’m doing it.

It has been 3 weeks since I’ve started and it’s been great, only issue is that I’ve noticed it’s really expensive 😢

Has anyone got any recommendations for cheap meals?
I like quorn mince, not as much of a fan of the quorn pieces.
I like soya milk products and oat is nice as well.
I prefer oat when cooking/baking.

Any advice would be great ☺️
Thank you!!

Hi everyone

I’m 22F with Adenomyosis, Pelvic floor dysfunction and just diagnosed endometriosis (I think? They keep changing it 😅)

I had an endometriosis ultrasound a few weeks ago and they said they found endometriosis but didn’t explain where and I just got my letter from my gynaecologist explaining that there’s “probable endometriosis involving the uterosacral ligaments”

Has anyone got this?? I’ve never heard of this before and I’m quite confused about it.

“There is mild thickening of the uterosacral ligaments to 3 mm bilaterally with hypochoic foci demonstrated; this appearance is likely to represent endometriosis. The left ovary appears to be adherent to the left
uterosacral ligament. No bladder or bowel muscle invasive endometriosis”.

If anyone could explain what this means I’d really appreciate it ☺️

Hi all,

I’m 22 with diagnosed adenomyosis, pelvic floor dysfunction and suspected endometriosis.

Recently was told by my doctor that my pain is muscle related and I’m not entirely sure if she’s right. I’ve really been pushing for a partial hysterectomy because the pain is unbearable but not allowed due to my age.

If I pay to see an adenomyosis specialist to do an mri with contrast can the results be used to possibly get referred for a partial hysterectomy?

I’ll do the MRI anyways as i desperately want to know more details and possibly how bad it is, what stage and type it is and if I have endo as well.

(I am aware it could not show but they definitely saw adenomyosis through a transvaginal ultrasound and diagnosed me so I am positive the mri would show something?)

And if anyone in the uk knows any great adeno and endo private specialists please let me know!

East England/London area - thank you!! ☺️

I posted this on the adeno community too but I’m confused about the endo situation??

Hi all, I’m 22 and went to my follow up gynae appointment today. (NHS)

History: Diagnosed Adenomyosis, suspected endometriosis.

Had heavy periods since 14 y/o and suspected adeno since I was 17. Diagnosed August 2025.
Pain in groin, uterus, thighs, back, hips, anus. Shooting pain & stabbing pain - crazy bloating, weak legs and nerve pain.

When I first arrived in the appointment I had a small chat with them and they asked to do a physical exam, they felt my stomach and my sensitivity to touch, did an internal exam with a speculum + swab and felt around the area to see what was painful.

They said my stomach was tense and unhappy and that my pelvic floor is weak and I have pelvic floor dysfunction.

Went back into the appointment room and they discussed my issues with me, they want to do a bone density scan as I’m on the depo injection.
They said I I’ll need to have an ultrasound to see if I have endometriosis. I said I thought it had to be a laparoscopy that I’d need to have to see if I have endometriosis. I believe if I have it that it’s probably minor/moderate and it’s mainly my adeno causing problems. They explained that a laparoscopy is gold standard and is not needed and that an ultrasound can spot deep infiltrating endometriosis (which from what I understand is the worst type) and that a laparoscopy is done after if they can’t spot anything on the ultrasound? Is this right? I don’t know if I’m being gaslit or lied to - I don’t know much about endo but know loads about adenomyosis.

I will also be referred for physio and to a pain management clinic.

The shocking part is that they said my pain isn’t linked to adenomyosis as I’m not bleeding (because of depo) and that she is certain it’s a muscle problem and my muscles are causing me this much pain which I just don’t believe. Said a partial hysterectomy isn’t necessary because whilst it will remove my adenomyosis I’ll still be in pain from my other issues.

My adenomyosis is the worst I believe. I’ve had it suspected since the age of 17 and it’s gotten so bad that I can’t work, I need mobility aids and I’m on strong pain medication.
She was saying to me I can’t have adenomyosis pain because I’m not bleeding but I’ve done my research and people can definitely have pain without periods?? My bloat literally shows that. The bloat isn’t related to my muscles so can she explain how that works??

Just that awful fake smile and fake understanding I see everytime I see a doctor only to find out they are gaslighting me and it hurts :/

I guess I did well as I got some sort of next steps but wish they didn’t have to lie to me for it..

Next actions:
\- Bone Density Scan
\- Endometriosis Ultrasound
\- Physio for pelvic floor dysfunction
\- pain management clinic referral

—
Please tell me I’m not crazy?? I swear what she said to me was mostly wrong?

Hi all, I’m 22 and went to my follow up gynae appointment today. (NHS)

History: Diagnosed Adenomyosis, suspected endometriosis.

Had heavy periods since 14 y/o and suspected adeno since I was 17. Diagnosed August 2025.
Pain in groin, uterus, thighs, back, hips, anus. Shooting pain & stabbing pain - crazy bloating, weak legs and nerve pain.

When I first arrived in the appointment I had a small chat with them and they asked to do a physical exam, they felt my stomach and my sensitivity to touch, did an internal exam with a speculum + swab and felt around the area to see what was painful.

They said my stomach was tense and unhappy and that my pelvic floor is weak and I have pelvic floor dysfunction.

Went back into the appointment room and they discussed my issues with me, they want to do a bone density scan as I’m on the depo injection.
I will have an ultrasound to see if I have endometriosis (confused about this as I understood I needed a laparoscopy for this and they just said that’s for severe cases??) and will also be referred for physio and to a pain management clinic.

The shocking part is that they said my pain isn’t linked to adenomyosis as I’m not bleeding (because of depo) and that she is certain it’s a muscle problem and my muscles are causing me this much pain which I just don’t believe. Said a partial hysterectomy isn’t necessary because whilst it will remove my adenomyosis I’ll still be in pain from my other issues.

My adenomyosis is the worst I believe. I’ve had it suspected since the age of 17 and it’s gotten so bad that I can’t work, I need mobility aids and I’m on strong pain medication.
She was saying to me I can’t have adenomyosis pain because I’m not bleeding but I’ve done my research and people can definitely have pain without periods?? My bloat literally shows that. The bloat isn’t related to my muscles so can she explain how that works??

Just that awful fake smile and fake understanding I see everytime I see a doctor only to find out they are gaslighting me and it hurts :/

I guess I did well as I got some sort of next steps but wish they didn’t have to lie to me for it..

Next actions:
- Bone Density Scan
- Endometriosis Ultrasound
- Physio for pelvic floor dysfunction
- pain management clinic referral

—
Please tell me I’m not crazy?? I swear what she said to me was mostly wrong?

Hi all,

I (22 years old) have adenomyosis (diagnosed via transvaginal ultrasound last August and have suspected endometriosis)

I had an urgent phone call gynae appointment in November due to having such severe pain for about 6-7 months straight and we had discussed different options for me but they wanted to see me in person to be examined. Gave me different meds and doesn’t think a hysterectomy would have any value ??
anyways got my follow up appointment tomorrow and not sure what to expect.

I’m trying to push for a hysterectomy but know this will be such a struggle with my age.
Also trying to push for a laparoscopy to see if I have endometriosis.
I’m unable to work due to my adeno and whenever I do try to work I only work for a few months max and end up in a severe flare for months on end.

I’m going alone and I’m so scared I’m going to get gaslit, the last time I had a in person gynae appointment they just told me to lose weight and sent me home with no help at all (back in 2023)

I’ve lost weight now and hoping I won’t get dismissed as I’m awful at standing my ground but I’ve done tons of research and super scared 😭

Any advice on how to advocate for myself?

Hi all,

I (22 years old) have adenomyosis (diagnosed via transvaginal ultrasound last August and have suspected endometriosis)

I had an urgent phone call gynae appointment in November due to having such severe pain for about 6-7 months straight and we had discussed different options for me but they wanted to see me in person to be examined. Gave me different meds and doesn’t think a hysterectomy would have any value ??
anyways got my follow up appointment tomorrow and not sure what to expect.

I’m trying to push for a hysterectomy but know this will be such a struggle with my age.
Also trying to push for a laparoscopy to see if I have endometriosis.
I’m unable to work due to my adeno and whenever I do try to work I only work for a few months max and end up in a severe flare for months on end.

I’m going alone and I’m so scared I’m going to get gaslit, the last time I had a in person gynae appointment they just told me to lose weight and sent me home with no help at all (back in 2023)

I’ve lost weight now and hoping I won’t get dismissed as I’m awful at standing my ground but I’ve done tons of research and super scared 😭

Any advice on how to advocate for myself?

Hi all! Is there any shops in the uk that I can find high stretch jeans?

Preferably shops in person and not online as I’m going on holiday in a few days and keep buying online and none fit 😢

Hi all!

Recently I had went to my GP because I’ve been having pretty bad joint pains, especially in my wrists/ankles/knees. Previously a few years ago a doctor did ask me about my knees as she noticed they bend back quite a bit and mentioned Hypermobility and I didn’t think much of it at the time - because of these pains i looked it up recently and realised it actually made sense and booked an appointment to get seen and fully checked.

Anyways, the doctor I saw said Hypermobility and scored me 9/9 on the scale. She heard my knees/wrists/ankles clicking, clunking, crunching etc and I saw in the notes only today that she suspected eds.

I only looked at that today because yesterday I had an appointment with an occupational therapist who said that a lot of my symptoms matches eds and to get it checked out.

I don’t really know much about the condition if I’m honest, I’ve been looking on Google - the nhs website and TikTok to try and learn about it as I’m really unsure but if anyone who has it could help it would be amazing ☺️

My history:
(22F)
I have diagnosed adenomyosis, Dissociative seizures (FND), Hypermobility and suspected endometriosis.
Im unsure if I may have IBS but will talk to the doctor about that.
I bruise easily, literally get bruises all over my legs and I haven’t even done anything or hit into anything they just appear?? I never thought much of it but I’ve had it my whole life.
I’m also quite sensitive the smallest touches hurt like a simple finger being pushed into me can hurt and don’t know if that’s also linked?

I know there’s multiple types of eds and it would be great if anyone has similar symptoms could say which one they have and how they got diagnosed? It says online to be referred to a specialist and then it says some can be diagnosed through the gp so I’m a bit confused..

My oc said that she’s seen many people with eds that struggle with gynaecological conditions/problems as well and that it may be worth talking to a doctor about it.

Thank you!!

Hi all,

I’m 22F with Adenomyosis, Dissociative Seizures (FND), Hypermobility and suspected endometriosis and IBS.

I’ve recently decided to buy an active wheelchair to help with my pain management and mobility.
I originally planned to buy it because I’ve got a holiday coming up in a place that has tons of hills and I know I won’t be able to handle it without one, but found that once I used it my pain was better than when I would be walking with a walking stick and decided that for longer distances I’d use it. For example day trips or if I wanted to get out the house for some fresh air etc.

My family kept going on and on about how my original chair (a hospital like self propelling wheelchair) wouldn’t fit in the car for the holiday so I decided to get a new chair because of that. But once I got my new chair it was then “try to avoid using it on the holiday” and I asked why and they were concerned my other family members would be judgemental and make fun of me for using it. I quickly realised that my original one probably could’ve fit in the car, they just didn’t want me to take one because of how others will act.

I’m quite upset about this, some of my family are accepting and understanding and will help out - but then there’s other family members that think I’m faking my FND and others thinking I just need to crack on and suck it up and get a job “like everyone else”.

I’m getting really nervous about this holiday, I want to have fun but I also don’t want the unnecessary comments and jokes about my health and my mobility aids.

I don’t know what to do anymore, I can’t walk up these hills without being in severe pain and would have leg weakness etc which is why I got this wheelchair in the first place.

I didn’t chose for this to happen, and no matter how much I try to explain to these family members they just can’t seem to believe me and I get so tired having to explain myself every time over and over again.

It’s exhausting and I’m starting to become more stressed than excited for this holiday and that makes me sad 😔

If anyone’s got any advice on how to handle this situation it’ll be greatly appreciated, I’m starting to get really irritated and coming off as quite rude because I’m getting tired of having to people please others because they can’t seem to wrap their head around on the fact that I’m not healthy.

Hi all, I’ve got a new quickie argon 2 and I’ve been spending the past two days practicing with it and I’ve already felt that my fingers are starting to get blisters.

I’ve ordered push rim covers but they won’t be here for another 2-3 weeks.
Is there any tips to help with this?

- UPDATE -

Thank you everyone for the help it’s been really helpful reading all the comments regarding the wheelchair and I’ve decided to invest in a active manual wheelchair instead and go to another showroom and just do that on finance ☺️
Shocking how a ‘self propel wheelchair’ isn’t actually self propelling..

Thanks again!

Any other advice or tips regarding general wheelchair knowledge/experiences would be great!

——

Hi all,

I’ve got adenomyosis, Dissociative seizures (FND), hypermobility (maybe HEDS unsure??) and suspected endometriosis.

This weekend im going to my first showroom to look at getting a self propelled wheelchair. I don’t have much money and it would have to be paid through direct debit/monthly installments but hoping to find one that’ll work for me despite my low budget.

I already use a walking stick but it doesn’t help for long journeys and I’m starting to get quite uncomfortable walking because of my pain.

Any advice for a beginner would be greatly appreciated! I’m nervous to use it in public put saw one online at the showroom I’m going to that is pink and I’ve started feeling quite excited about having one that’s pink and I can decorate! As well as seeing videos online on how much they have made people feel more confident.

I’m looking at getting some stokes and push rim covers! (Probably not all at once as they’re expensive) but yeah!

If anyone knows of any replacements that I could attach to put my feet on that would be great as I’ve heard online the attachment to put your feet on is quite heavy and they look quite bulky.
(Trying to think of ways to make the wheelchair as light as possible)

Thank you so much!
For reference I am looking at getting the
I-Go Candi Self Propelled Wheelchair

Thank you!! ☺️

Hi all,

I’ve recently been diagnosed with hypermobility (scored 9 in the test) and I’ve had issues regarding my knees, wrists and ankles for a long time.

My wrists click, crunch, pop etc when I twist it round in circles - same with my ankles.
It’s gotten quite painful if I don’t do it, yet when I do it I still have pain.
My knees lock and click quite often and I’ve really been struggling with pain recently.

I put all my weight on one wrist as I tried to lift myself up on something a few days ago and it’s been really painful since, I put it in a brace but that made the pain worse ?? So I had to take it off.

The past few nights I’ve really struggled sleeping, my ankles hurt like crazy no matter how I sleep. Same with my wrist that I put weight on and my knees.

I don’t know what to do. I feel like I’m going insane. My legs really hurt and it’s starting to hurt to walk as well. Been trying physio but it keeps causing my joints to click more and it just hurts :(

Any advice on what I can do to help??

I also have other conditions such as
Adenomyosis, Dissociative seizures (FND), Migraines and suspected endometriosis. These conditions already affect my mobility so I don’t really want another condition to make my mobility even worse.

Writing this at 1am struggling to sleep because of the pain and also getting pins and needles in said wrist/hand.

I wonder if I may have HEDS? I’ve heard about it but I haven’t done much research so I’m unsure.

Thank you!!

Hi everyone, I’m looking for some advice/help. My cat 12M has been suffering from a possible nasal blockage/infection. He’s currently on Day 3 of Synulox but the vet is concerned there is a tumour or a physical blockage that needs a rhinoscopy.

I just received the quote and it’s approximately £1,600. I don’t have insurance, and as much as I want to help him, I simply cannot afford this amount upfront.

The current situation:
• He is sneezing thick green snot and occasional pink-tinted mucus - this is only coming from his right nostril and not both which is why the vet thinks this is more likely a blockage/tumour instead of cat flu.
• He is still eating, asking for treats, and has okay energy
• I’m currently managing his symptoms with steam sessions and cleaning his nose daily.
• I am giving him the synulox 2x a day every 12 hours.

I just wanted to see if there are any UK-based charities (like PDSA or Blue Cross) that help with specialist surgery costs if you aren't on specific benefits? I am on PIP, UC and New style ESA if that helps for anyone.

Does anyone know of "low-cost" vets in the [South-East UK] that might be cheaper for diagnostics than a standard private clinic?

Has anyone successfully negotiated a long-term payment plan for a bill this size?

Are there any "Plan B" treatments (like steroids) that might help manage a nasal tumour or blockage if surgery is truly impossible?

Any advice on how to lower this cost or find support would mean the world - thank you!! ☺️

Hi all, I’ve been experiencing awful migraines for about the last 3 weeks or so and decided to contact my doctor.

History:
I have Dissociative seizures (FND), Adenomyosis, Suspected endometriosis, hypermobility, anxiety and depression. May also have IBS - currently looking into this.

I am regularly taking paracetamol, codeine, naproxen, duloxetine, propranolol and omeprazole to manage my issues.

—

My doctor believes that I’ve been experiencing these headaches because of medication overuse as I’m taking these nearly every day.

He has suggested I stop taking my painkillers and naproxen for awhile to give my body time to reset and just take Sumatriptan to help with my migraine attacks.

However I don’t know how I’m going to manage not taking my meds for weeks on end.
I need anti inflammatories to manage my endo/adeno and need some sort of painkillers for my pain, joint pain, nerve pain etc.

Does anyone have any suggestions on things that can help that aren’t medication related?

Thank you!! ☺️