u/Affectionate-Lynx519

Well either the to say see ya. Sadly. This man has been great to both me and my family. Truly the man I’ve been waiting for my whole life. He has spoiled my. Shown my such live. Travelled more then I could ever dream of. And tried wit he my sons. Leave been spending winters in the Dominican and life has literally been a dream. Suddenly out of nowhere my 24 year old son has lost all kidney function. On dyalisis looking at a diagnosis for a transplant (whole other story). But he is struggling to keep alive with no hope or energy or life inside. And this man has been trying. But he just wants me to leave him alone in this state of misery lost loneliness. No energy to even eat. He wants and expects me to just leave him alone. I know I’m giving up my life. But honestly my boys are my life. I’m the only person they have And. Without them I am Nothing. We’ve been trying so long to I think he is just tired of watching me be a caregiver. And hmymmn personally believe he is jealous of the time I’m not spending with him. I’m torn. Torn in two so bad.

Went to a gynocilgist. And they found a polyp so they biopsed it he said. Now I’m
Scheduled to have it removed at the hospital to be put under to remove it. My sister said she’s never heard of that. Just wondering anyone else had this. Or maybe I’m getting special treatment for being a wuss cry baby on the table. Ummmm ya with a whole school down there in the basement. My basement 😳🤷‍♀️🤣

My poor son has been falling apart mentally. He is overwhelmed with this new life that has been suddenly been thrown at him. Out of nowhere my extremely strong healthy amazing 24 year old son Has 3% of his kidney left on dyalisis and waiting for a diagnosis to see if he is eligible for a transplant. It’s been 6 months of hell. He says he doesn’t want to go on anymore. Being sick all the time. In pain overwhelmed feeling like the shell of the man he use to be. Lonley depressed and giving up hope. Feels like a walking dead man. And looking at his future I think is the hardest. Seeing no end in sight of the misery he feels. Dyalisis forever. If he gets a kidney all that entails. Then knowing he will most likely need more down the road. I’m broken and sad. Terrified. I’ve never had such a sad feeling listening to him vent last night. Wanting him to open up and vent to me. As I’m the only person he has sadly. His father passed away. We are lost. Any words of encouragement for me Anything at all. Please help a lost mother. How life can change and everything taken away in a second. Living a nightmare. Hating God for doing this to him. Ahhhhhh. Fuck 😞😡😤🤬😵‍💫😥😳😳😳

Hey there all you soldiers 💪 My son 24 year old was told in January 2026 He suddenly out of nowhere he had 5%of his kidney function left and was put on dyalisis immediately and on the transplant list. He has been a very healthy strong boy and now a man his whole life .. Obviously devastated shocked crushed and dis belief …is where we are now. He does home pd and trying to learn and adjust to this huge change in his life. Everyday is a challenge. In and out of the hospital constantly. It’s been a few months no hospitalizations so very grateful for that.

So many things to go on about so I’ll try to focus and get to my point ….sorry I’m just in shock and lost 😞 watching my amazing son go through this ….. Unfortunately they haven’t been able to diagnose him because what little is left of the kidney has been so damaged and scarred.. When they did the biopsy they said a “marker showed anca vasculitis. FSGS. But apparently not entirely positive. So they can’t go forward with a transplant until they have a diagnosis. So we are finally seeing this amazing auto immune specialist at Mount Sinai this Wednesday August 19/2026.🙏🙏🙏

I seriously feel like I do t have a freaking clue what I’m doing. Learning to care for him and all that it entails. Doctors meds. Ordering supplies ect. I’m completely overwhelmed and feel so very alone being the only person he has to help him My mind is in overload and personally feels it hardly works anymore. I’m more in zombie mode trying to not entirely think too much. Or it just gets to much and I fall apart 😞

As you can see if you’ve read this far. I’m also having a hard time. I’m just wondering if any one has any advice to give me. As to what to expect at this very important appointment. And any advice at all as to what questions I should ask. We’ve waited so long for the appointment and it might be our only chance to see him So any advice would be so gratefully appreciated. … From a very worried and feeling lost Mother 🤷‍♀️🤷‍♀️🤷‍♀️🤦‍♀️Thanks to anyone in advance for any advice 🙏🙏🫵

My 24 year old son was diagnosed with a rapidly progressive disease Vasculitis Anca. Six months ago he was a very healthy normal very strong young man. And suddenly he has no kidney function on dyalisis and needing a kidney transplant (hence to say the medical system failed us. And failed to refer us to a specialist to tell us his kidney was only functioning at 30%.had they had told us his kidney may have been ok…but that’s a whole other story sadly horrific 😤🥲)
It has been a drastic shocking decline watching him suffer in pain. In and out of the emergency too many times to recall. My heart is Brocken watchingmy amazing son go through this.
He is learning to understand his body and the at home peritoneal dyalisis but as you all k ow. It’s a roller coaster of up down and all around.. one day he is great. The next he may not be. What I’m hear to hopefully find some advice and support on is. Me and being his caregiver. He is learning to do mostly everything for himself. Setting up machine and all that stuff. But the diet and what he can eat is all on me. It’s just me and him. We really don’t have anyone else. Before this I was travelling and we were both living our lives. I am afraid to leave him alone at night. And my relationship is falling apart with the man I love. It’s been all great till my son got sick. And he thinks I should be able to just go away here and there even for a couple of nights. But my heart is so confused. 😵‍💫. My son is my world. I’m so worried if I go away and he needs me. I’m an awful Mother. It’s just been a crazy scary heartbreak. And I am exhausted and so frustrated with nobody understanding how I feel. You just don’t k ow till ya know how heartbreaking it is to see your child (man child ❤️) go through this. Being scared that he may die in his sleep. Any advice. From a confused broken hearted mother 🙏🙏🙏😞🤷‍♀️