u/Affectionate_Big_241

undiagnosed

venting

I have been having chronic pain since december of last year in my back neck, legs feet, eventually lost my speech slowly getting it back but it is slurred and very toddler like. tremors on left side of my body hardly can walk, balance issues, constant headaches

These past few months just doctors and doctors back and forth between we don’t know to more testing. one says FND one says similar to MS but not enough lesions.

today i got my neuropsych test and it says cognitive issues cognitive decline demyleating disease unspecified. leaning towards MS

and i feel sad and tired idk why idk how to explain it. for months i have felt like it’s MS but nobody listens i have lost significant motor functions i am slower than i have ever been. memory is horrible can’t remember anything and finally the test results reveal that but i have been saying this for months that I am declining my brain feels on fire and nobody listens.

and now i just feel like it’s going in a circle once again.being undiagnosed sucks even worse when you feel like what you have been saying all along is finally showing in the results and it will take more months before anyone will decided to finally want to put a label on you. i am tired…

this is all over the place I am sorry

reddit.com
u/Affectionate_Big_241 — 18 days ago